Wegener's Granulomatosis

Jan 06, 2005 11:50

Hey....if you guys want to know a little about my disease, I found this website that explains it pretty well. Wegener's Granulomatosis

If you're curious...

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fellow WG sufferer anonymous April 21 2006, 20:03:31 UTC
hi, my name is Kate and I have lived with WG for the last 8 years. Last December I finished a 4-week course of Rituximab treatments(4-hour IV treatments) at the NYC cancer center. I have flared on a realitively regular basis( a few good years here and there) since I was diagnosed. It is 5 months later and I feel good, my ANCA is negative and bloodtests/levels are normal. I have tapered off the prednisone and may also taper off the methotrexate if things keep going well. You may have looked into this, and found that it may not be right for you, but I am just throwing this out there in case you haven't heard.

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