Not even worth a post. He who learns must suffer. --Aeschylus

[aucheme]

Dysautonomia. It hurts to breathe. Literally. I am giving it all up, but to no avail. These pains are sharp and crippling. The fatigue and anxiety are hardly manageable. Could you imagine constantly being on the verge of tears...if you don't share this particular brand of pain, you won't understand it either. I wouldn't wish this on any

Comments

[guyfawkesday]

My father and sister both have dysautonomia as well. Many have speculated that I have it too, though my symptoms don't manifest themselves quite so severely.

It's such a random disease with a strange set of indefinite symptoms that could be anything. "Dysautonomia" just means some screw-up in the autonomic nervous system, and it's so broad as to defy definition. No doctors have a clue what to do about it. You feel like you're alone, but I promise that you're not.

Thanks so much for your post!

[aucheme]

That's all so true. I've been to an orthopedist, a neurologist, a psychiatrist, a cardiologist and a slew of general practitioners, to no avail. My best advice was from my new doctor at an MVP center and from a book I've read about MVPSyndrome entitled Confronting Mitral Valve Prolapse Syndrome. I was just glad to find out that I wasn't having a heart attack, and it was nice to know that my skin issues, back pain, chest pain, hyperventilation, palpitations, shakiness, anxiety, depression, nightmares, lack of concentration, joint pain, PMS, headaches, memory issues and muscle twitches weren't from something malignant or from many different causes. It seems that the random issues I've had over the past few years all fall under the Dysautonomia blanket. I believe that this disease does run in my mother's family...my grandmother and my aunt have symptoms, but I'm not sure about my mom