I made a post on facebook about the doc's thought that my fatigue, and other symptoms was a flareup of PCOS - and there wasn't much I could do but wait it out.
Someone posts, "I looked up what you can do for PCOS and it says exercise, lose weight, and healthy eating. Does that come in generic form? Oh, it does!"
Now this gal is someone who is heavier than me, but she doesn't have PCOS. She's being snarky because she's been able to lose weight at a much faster pace than I have. Yes, because she doesn't have PCOS. It is extremely hard for people with PCOS to lose weight. Not only that, eating right, weight loss and exercise only do so much. They don't stop the painful periods, the two months between them, the cramping, the twisting cysts, or any of the other symptoms.
My response to her was, "If your comment was sarcastic, I'm not amused." and gave her a bit of information. PCOS *is not* caused by being overweight, the weight gain is a symptom of it.
I'm tired of people who make general comments that I'm not doing what I should to control PCOS. You know what? Fuck you and the horse you rode in on. I'm tired of you looking something up on google and assuming you are a know-it-all on the topic and giving me "advice".
I have dealt with this for 11 fucking years. And before that, I dealt with the symptoms separately because PCOS wasn't even a known factor. And trust me, adult acne, hair on the face, weird gray skin on the elbows and knees, dizziness, the extreme fatigue that lasts for days that all you want to do is sleep and nothing else, SAD/GAD, and all sorts of other symptoms *suck*. Once we realized what it was, we tried different things. I was on several different birth controls over two years.
Guess what? None of them worked. Most of them fucked up my system, and the last one had me hemorrhaging. After that my doctor said surgery was it.
Surgery SUCKED. I was out of it for over a week. And they removed the cysts, but the cysts came back in force after 2 or so years.
I've done the research, I've been on top of this since I was diagnosed. I keep up with the latest theories and the latest crackpot "causes" of it.
I'm the one that fainted in a mall because I was so sick due to my period - I ended up blacking out after getting severely ill twice in ten minutes. I'm the one that's dealt with cysts twisting and bursting to the point of not being able to move, and then getting told that it can't be *that* bad. I'm the one that has tried *Everything* to control my acne, my weight swings, my severe general and social anxiety, and most of it to no avail.
My self esteem sucks and I can't break through to fix it because of the above issues.
But I obviously don't know anything about my own FUCKING DISEASE that someone has to get holier than thou to me on FB.
And now I can't stop crying. This type of thing makes me feel even worse about myself than I normally already do.