I'm not you. You're not me. But we're people. Yay us.

[brightlotusmoon]

So. Multiple friends have suggested I write something like this, because no matter how often I say it, I still get invalidated, scolded, told I shouldn't be doing it because it upsets people. And of course, it would be talking about my life, my disabilities, my personal health, in public forums

Comments

[alumiere]

I read all your posts and find them fascinating. But I rarely comment because I don't understand; my broken shares a few names with your disabilities, but I process in a totally different way, and I don't have epilepsy or the disociation you seem to get with it.

Thank you for sharing with us though - sometimes I get bits of clues about fibro which I take to my doctor. And adding Soma because you talked about it has helped.

[el_esteleth]

Your posts about what you experience have been tremendously helpful to me, helping me find words for things that I previously had no way of articulating. It has also given me the opportunity to learn about things that I don't experience, or learn how other people experience things who have some of the same disabilities. Reading your things is very helpful for me, and I've gotten to know new people through it, as well. One of the things I think is that it's important to be able to talk about things, because then the ignorance about things gets defeated.

I agree with you about the Suffering Olympics. That's one thing I have a hard time with IRL. The majority of people try to one up each other if someone is having a rough day of it, no matter what that rough day is. I think that doing that just invalidates people, their experiences, their feelings, and for me it ends up being really hurtful.

So I just wanted to say thank you for sharing the way you do. It really helps me. :)