I am so sorry to hear about your sister Rebecca. As to your sister Katie, I might just be dumb but how can one function without a mouth? Is there just no space on he face for it or does it simply not connect to a stomach? Sorry to pry I've just never heard of this condition before.
Her upper and lower jawbone are fused together, so she has lips, but no real mouth. There is only like one other person in the world who has it--maybe--all the information is in Japanese.
What she has of a mouth does connect to her stomach--she can drink through her mouth, but she aspirates (food goes into her lungs) so she can't drink anything other than water. She breathes through a trach (tube in her neck) and eats through a G-tube (tube in her stomach). It's not prying--it's not like a normal thing :)
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What she has of a mouth does connect to her stomach--she can drink through her mouth, but she aspirates (food goes into her lungs) so she can't drink anything other than water. She breathes through a trach (tube in her neck) and eats through a G-tube (tube in her stomach). It's not prying--it's not like a normal thing :)
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