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[chaggalagirl]

so i've been on my medications for a week now. most of the vasculitis spots have begun to fade and peel (like after a sunburn), and the rheumatologist said i shouldn't be getting any more. except i am. there's a small crop on my upper inner thighs, which thankfully don't hurt, and i've got about two dozen tiny-to-medium spots on each hand, and

Comments

[bluepapercup]

I am really glad that Justin and your family have been there for you. It has certainly sounded like they've been more than willing to go the extra mile, and that's a huge help and blessing. I'm glad you know you're loved!

I wish I was closer, I certainly would have cooked for you and brought you smiles and company. Alas. :(

I'm sorry to hear that the spots and rashes and various skin ulcerations are plaguing you again. Ew. Any idea if there will be less severe outbreaks over time? And I know you mentioned possible meds to ease your symptoms...any word on that?

*HUUUUUUUUGS*

[chaggalagirl]

i tried calling my rheumatologist today about the skin stuff. of course her office is closed til 1pm. i will try her alternate number after breakfast. i hurt still.

i'm seeing my eye doctor today, both for new glasses and because my eyes are really angry and bloodshot. maybe vasculitis in my eyes? the skin on my eyelids is angry, too.

but my face and neck are very oddly rashy, and they have the texture of an orange peel. my HANDS are so bad, vasculitis spots in every crease and every moving part. ugh. pain pain pain. my pain tolerance has decreased dramatically, too, which doesn't help. i just...

i'm tired. i've gotten SO MUCH BETTER already, but i'm tired. i don't want to hurt anymore.