I'm geting my hair cut today its time, its way long but I"m shedding soo much its crazy, i remeber in high school before i got really sick, i had such a full head of hair i would have to get it thined out and now there is like nothign up there, i have a bald spot starrting again from the shunt scars, it had been covered with hair but since im ( Read more... )

So the house next to us, the guy that owns it has totally destroyed the nice hosue it used to be, he cut up his deck for fire wood and its just a dump more or less, there are 3 people living in there and they stay in the hosue for days at a time it seems. Well we are pretty sure they're doing drugs over tehre, it just has thast look, all their ( Read more... )

Well here we are once again, a mess with my pain meds, for some reason Rich called us tellnig us he only was able to get one of those huge ass bottles from his supplier so my dad called and htere is no shortage so we really don't know what the heck is going on so now we're trying to get this crap figured out here like today since tomorrow i have ( Read more... )

Ok Crescent strikes again, the other day when we picked up my bag of vanco i had to sign the stupid abn thing for medicare and it said how much the vanco would be if the insurance didn't cover it, they also had the per deim supplies ie ONE IV line, well teh vanco was 8.75 the per diem iv line $45 that is one damn expensive IV line, then yesterday ( Read more... )

Rite Aid is going out of business, honestly i have no idea how the heck they were able to stick around for as long as they did, but it's gunna suck now since they always had the good deal on batteries and it was the place to go if you needed something and every where else was slammed. They were really expensive on some things and hten other things ( Read more... )

I'm soo freaking over this stupid ssdi review bull shit, i will not feel ok until i find out that they're not gunna cut my ass off, this fucking sucks, im soo much worse now thant before but since Im dying I dont goto the hospital all the time anymroe for my lungs, i have the hostpial in my room, i dont see pulmonary, no one will take me they're to ( Read more... )

Last night when my dad told me that we were leaving at like 530ish i thought he was a freaking nut job, well I guess he was right (i better not let him see that comment) it took us 3 hrs 45 mins to get to santa monica freaking a the traffic was bad but there were total morons out there which is why. We had some dumbass stop in front of us waiting ( Read more... )

I went for teh pt consult at Ballard today and they are going to have me do a month of pt which is 4 times in the pool and then they have to get the ok from medicare to go on, i guess you have to evaluate it every month to see if you still need PT and tehy can justify it. This is where I'm gunna get screwed over I know it cuz I dont have an ( Read more... )

I got a letter from Social Security saying that I need to come in for my case review which we alreaqdy did, but my dad called to take care of this and they said they're so backed up that they're not taking calls u have to go in person so he's going down there right now. I feel bad though, i totally freaked out and started a huge fight between my ( Read more... )

I dont feel good rigt now and i'm affraid going to go hide with my stuffed animals they'll protect me