Welcome To The Weekly EDS Alert Blog Newsletter

Apr 16, 2025 12:49

This is a placeholder for a blog that collects various links about Ehlers-Danlos Syndrome, a rare genetic condition,  and pulls them together into a weekly (or bi-monthly) newsletter.

To read the newsletter go here:
http://edsalert.wordpress.com/

If you are a member of  Livejournal you can go here and add this subscription link to your Friends List. You can continue reading the newsletter as you would normally do on your Livejournal Friends Page.
The subscription page is here:
http://syndicated.livejournal.com/eds_alert_wp/
(click on "Add this feed to your friends list ...")

All other users: you can track the newsletter by pointing your RSS feeds to this link
YOU DO NOT NEED TO FRIEND THIS JOURNAL TO READ THE NEWSLETTER.

In August of 2007, we moved this newsletter and all its contents away from Livejournal because the company's new  'no linking" policy made it impossible to link to personal web diaries and/or or websites that might contain content that Livejournal could consider offensive.  Our intention has always been to provide information about Ehlers-Danlos without censorship or judgment.

Parental Advisory: Having said this, some of the personal blogs and websites we may link to in the course of collecting information about Ehlers-Danlos may contain content that is adult in nature. If you are a parent, please take note.

If you have any questions, please send me an e-mail at:
edsalert@gmail.com 

placeholder

Previous post
Up