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[neo_lunar_haze]

Hello everyone. My name is Briitany. I am 23 years old. I am not currently diagnosed with EDS, but my mom has been diagnosed with EDS for about a year now. She is 41 years old and the pain has become so unbearable that she has been unable to work because of it. She also suffers from Fibromyalgia, amongst other things, of which I cannot name off the

Comments

[xeran]

i think EDS has some tendencies which will come out on their own, but there are definitely environmental factors that can make it significantly worse. make your muscles as strong and balanced as possible., yoga, pilates...if you ever get bad EDS symptoms, a strong muscle core will be your best friend. once the symptoms start happening it is alot harder to get up the energy and will to exercise. eat a healthy, natural diet. if you start getting symptoms, start taking glucosamine supplements daily. do not ever do any "party tricks" if you get the ability to pop your joints out of place. dont ever hyper-extend your joints just because you can. there is a good book written on the basics of hypermobility eds, if you search AMAZON for "joint hypermobility" youll find it

[alchemia]

Ditto all of this.

[neo_lunar_haze]

Thank you both for the suggestions. I will definately keep them in mind.

[trialia]

As far as I'm aware, IBS is more common in people with fibromyalgia than with EDS, though I have both... I'm pretty sure that your mother having EDS-III means that if you do, it won't be a different type of EDS. Being autosomal dominant. You could also have just a touch of hypermobility and have escaped full-blown EDS, like my sister (our father and I both have EDS-III, she doesn't). What's your skin elasticity like?

[oceanschild]

Exercise is the biggest thing. Muscle strength is what kept me from showing any serious symptoms for years; when I lost a lot of weight due to being sick from other things, my symptoms started showing up, I started dislocating a lot of things at the drop of a hat, and now it's extremely difficult for me to exercise enough to build up the muscle mass I need to prevent injuries or joint pain. As a previous poster mentioned, yoga and pilates are great for this, though yoga must be done with caution so as not to overstretch or injure the joints (tell your instructor what you have - or may have - as a rule, so that they know to supervise closely and to tell you when you're pushing a joint too much, as opposed to stretching a muscle as desired.)

[anonymous]

Check this out: http://www.pregnancy-bliss.co.uk/ehlers-danlos-syndrome.html
Likely to be quite useful since you do not really know your diagnosis as yet.
xx

[alatoo]

Brittany, I inherited EDS from my father (my brother and sister did not), and my daughter, in her turn, from me. The similarity of signs is so apparent it is hard to miss. So if you do not see any of your mother's in yourself, most likely, you did not get it.
I would not call EDS exactly a "disease". It's an inherited condition that can lead to a disease, but other factors play role, too. If you still have doubts, just work on keeping your muscles strong and stay away from high impact activities.