Newbie!!

[v_eds]

Hi everyone!
Im new to this but so glad i found it!
Im 26 year old female from ireland. I was diagnosed with vascular type ehlers danlos many years ago.
it has truely been a rollercoaster ride of events for both myself and my family.
i look forward to getting to know you a

Comments

[lorripop85]

Hi, I am recently diagnosed with EDStype3.... i have been in and out of hospitals and meeting with consultants all my life. Only last year they diagnosed fibromyalgia, I also have severe Reynauds syndrome. I knew this wasnt the whole story.... my constand clicking and popping joints were ignored, also have skin so sensitive sometimes my epelids bleeed- so I went to a Genetic specialist to rule out Marfans syndrome, some of the specialists thought i may have it. Finally i atold I have EDS3 but cant find any info, support online in Ireland.....if it affects 1 in 15000 surely there must be something about it. How are you doing, and how are you finding things ? :)