Head squirrels

[emmelinemay]

I just posted this over at maybetwisted and thought I may as well post here too.

Comments

[hirez]

Crikey

[neecerie]

For all of my life I have basically checked the 'sometimes' box myself. There are things that if I do them, serve to maim me for days to weeks, spending a whole day walking at a fair or festival pretty much renders me housebound afterwards. I do it when I think it's worth it , but know that is the result .

Yet for most peoples minds they would not say I had an issue. So I totally get this whole notion since I often have to choose whether to 'make a fuss and not do something ' which tends to require explaining the invisible. Not easy

Yesterday I was on a ferry and met a young girl with her family. She was getting cold on deck and told her father her hands were cold. She then giggled a bit and said 'this one less though'. She then shows me her hand, which had three fingers and a thumb, not even all well formed and said 'it's a different kind of hand' and she and I launched into how some folks 'different' is right there so you can see it, and other peoples is less visible like mine, but that most people are different somehow. It's just

[kiss_me_quick]

I have HMS too, though not to the same extent. I only discovered this in March, when I saw an NHS physio who told me this was why my feet hurt so much. I'm certain the walk to and from Eton Manor in unsuitable shoes made it worse and I was tempted to try for the mobility bus but also thought people would think I was a fraud what with being able to do the actual performance. In hindsight, I wish I'd done it. My knee's started to get painful now too and I'm trying to do loads of strengthening exercises to try and help because there's no way I'm pulling out of doing the New York Marathon in November.

[cookwitch]

I check the 'sometimes' box too. I have a Thing, and sometimes that Thing is an utter beast, and then other times it goes away and I feel like a fraud if I sit in the disabled seats because the "but you don't look sick." thing kicks in. (I still sit in them. Dammit.)

You push your body in ways that I cannot even comprehend, and I admire you wholeheartedly for that. I watched the Paralympics last night, saw Dave Weir, cried when Oscar only came second, bloody well sobbed when the lady with cerebral palsy won the dressage, cheered on all the people with 'disabilities' both visible and invisible, because OMG Olympians, but OMFG Paralympians.

My favourite story about Oscar is when he was being stared at my kids on the supermarket, and the moms all shushed the kids and told them not to stare.
He welcomes it, told them to ask all the questions they wanted, and then told them that "This is what happens when you don't eat your greens."

LOVE.

And much love to you, squirrels or no.