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[eowynk1011]

Individuals with EDS have a defect in their connective tissue, the tissue that provides support to many body parts such as the skin, muscles and ligaments. The fragile skin and unstable joints found in EDS are the result of faulty collagen. Collagen is a protein, which acts as a "glue" in the body, adding strength and elasticity to connective

Comments

[edsalert]

Hi there. I wandered your way and found your journal. I also have EDS Type 3. I am currently volunteering on a newsletter that pulls together links to EDS news and blogs and medical info on LJ. More here:

feel free to pass the word around to anyone else who knows about EDS.
http://edsalert.greatestjournal.com/

[eowynk1011]

Hi,
I actually have BJHS, which could actually be EDS, but I've never been genetically tested for EDS so that I don't lose insurance coverage. I don't have the skin problems that are classic signs of EDS, I just have hypermobile joints which cause me pain. We just discovered this in July after I've dealt with injuries at almost all of my joints. I do like reading your newsletter. Thanks for letting me know about it.

[edsalert]

glad the newsletter is helpful