Somewhere over the rainbow...

[eternal_wonder]

Beanie had her MRI yesterday and thankfully, everything was negative. The poor baby still cannot walk 2 steps without falling down. Her gait is just so...well, she looks like she's just learned to walk. She was markedly worse this morning with her walking, but I think the upper body tremors have subsided a little. I've done some research on

Comments

[cazaderomoon]

I'm glad the tests came back negative. Do they know what's wrong? I'll be thinking of Beanie and sending healing thoughts her way.

sorry to pop up weirdly like this...

[anonymous]

googling oms, came across your entry from september 05, which i backtracked to this.

my son, now 15, also has oms. i know how terrifying the stage you write about here is, and it looks like it took you about as long as it did me to get a diagnosis.

how is your girl now?

Re: sorry to pop up weirdly like this...

[eternal_wonder]

She is absolutely perfect. We are in the final weaning stages of the IVIg infusions (2 left!) and stopped the steroids on Thanksgiving day (11/2007). She has some residual opsoclonus, but thankfully no sign of full-blown recurrence. As it stands, she's a perfectly normal almost-5-year-old.

It took roughly 4 months to get a diagnosis and that only happened because I googled her symptoms and found Dr. Pranzatelli. The doctors here in Austin were clueless - as is much of the world, I think.

How's your son? you can email me off livejournal at cara(dot)smith@gmail (dot) com.