K ... I am so sorry you are struggling with this. I know you have worked so hard over the years to get things under control. I can only imagine how rough this must be for you and for T.
I wish I had something I could do. If you or T need/want to talk about it please let me know.
Re: HypoglycemiafaustinAugust 5 2009, 17:07:54 UTC
Hey, vanmeerbeast?
Islet cell transplants, like any other organ transplant, require life-long dependence on immune suppression drugs. This would be worse than the type-1 diabetes I have now.
The solution, the cure, is to create a genetic clone of myself and implant the stem-cell-grown new pancreas.
There is the theoretical question of whether the auto-immune disorder that (we believe) originally killed my beta cells' production of insulin will reassert itself, perhaps again kill my beta cells. It seems improbable though, and the cure is certainly worth testing this question. The auto-immune conditions which caused my diabetes may have been the result of a specific virus, or even extreme levels of stress coupled with specific viral infection. We don't know.
Re: HypoglycemialaffingkatAugust 7 2009, 06:42:49 UTC
Do you still have antibodies? After 30 years, I do, so I suspect a transplant wouldn't do me much good. But then, I have multiple autoimmune diseases. You only have just the one, right? Even without a transplant, there's some evidence (not sure any of it has been published yet) that your beta cells might regenerate on their own, and certain immune suppressants might facilitate that process. I suspect that may be happening with me, but I don't have any evidence of it yet, just a sneaking suspicion based on the patterns I'm noticing with my blood glucose levels. My doc is really excited about it, and was pleased when my RA required treatment with one of these drugs.
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I wish I had something I could do. If you or T need/want to talk about it please let me know.
*hug*
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Richard
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Islet cell transplants, like any other organ transplant, require life-long dependence on immune suppression drugs. This would be worse than the type-1 diabetes I have now.
The solution, the cure, is to create a genetic clone of myself and implant the stem-cell-grown new pancreas.
There is the theoretical question of whether the auto-immune disorder that (we believe) originally killed my beta cells' production of insulin will reassert itself, perhaps again kill my beta cells. It seems improbable though, and the cure is certainly worth testing this question. The auto-immune conditions which caused my diabetes may have been the result of a specific virus, or even extreme levels of stress coupled with specific viral infection. We don't know.
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