Comments | fealubryne: Words and numbers make my head hurt!

fealubryne

Words and numbers make my head hurt!

May 15, 2012 00:10

Ugh. Things have been... rough. Mother's Day was fun, but it wiped me. I have been utterly, utterly wiped. Like, to the point of being unable to even convince myself to get off my fat ass and move across the room. So tired ( Read more... )

Comments 9

thistle_chaser May 15 2012, 15:39:02 UTC

Arg! I'm going to be thinking about you while I'm offline! I'll be back online early in June. I'll miss wishing you good luck, so I'm doing it now! GOOD LUCK! And be back at 100% soon! :D

fealubryne May 16 2012, 02:33:01 UTC

Aw, thanks! I hope you have an awesome trip - you should take pictures and stuff to post so I have something to look forward to! It's bad. You're one of those people I count on to post at least once a day, and when you don't I get sad. I'm definitely going to miss you.

thistle_chaser May 16 2012, 02:37:37 UTC

Heh! I try to post a lot without spamming. :D And I'll take tons of photos!

Yours is probably too big for this now, but seat and teething ring!

( ... )

fealubryne May 16 2012, 03:59:28 UTC

Actually... she's still shrimpy for her age. The size of a 3-6-month-old at 9 months, heh. I... could actually see being able to do that with her... XD

Thread 5

evilgrayson May 15 2012, 18:16:41 UTC

Too many people fail to appreciate the present. Too many people are so caught up in the future and the past that they forget to live in the moment as well.

Some things are fated to happen; it's what we do about them that makes us.

You're still one of the best people I've ever encountered.

fealubryne May 16 2012, 02:37:09 UTC

Some things are fated to happen; it's what we do about them that makes us.

Some days, the rough days, I want to just curl up and cry. Or scream. Or ask... someone, something, "Why me?" But I guess it has to be somebody. And yeah. If it's going to happen, might as well focus on the parts that make me better, rather than let it destroy me. Or something like that, I guess?

You're still one of the best people I've ever encountered.

Thank you. That honestly means a lot to me.

firebyrd May 17 2012, 10:12:57 UTC

*hugs lots* I hope it doesn't get too much worse before it gets better.

As for your family not knowing more than they have to? Uh, they need to be seriously informed about this. I'm not entirely sure how you think you can keep your mom the nurse in the dark anyway, but both she and Alex need to have all the information so that if serious shit does go down they can make appropriate medical decisions for you. Your mom especially at this point, since you don't have anything that tells doctors that Alex has a legal right to tell them what to do with you. Anyone of an age to be able to make decisions about their future medical care should have conversations with their loved ones about this sort of thing (I want to be an organ donor, do not resuscitate, do everything to keep me alive even if I'm a vegetable), but especially someone with a medical problem like this that could lead to Very Bad Stuff.

fealubryne May 19 2012, 00:28:14 UTC

It's not that they're not informed - they know warning signs to look out for, they know what to do in an emergency, and they know that we're going to have to take precautions. Thing is, they don't frequent the forums and help circles. I don't think they need to hear the cautionary and horror tales that people tell, I don't think they need to be scared. It's one thing to be aware and prepared, which they are. But so far I'm trying to play up the positives: 100% cure rate for Cushing's, two medications for life as opposed to, like, six, people can live relatively normal lives. That sort of thing. They know it's nothing to mess around with, and it's better to err on the side of caution if they even suspect something's wrong ( ... )