Invisible Disability Meme Mons Fault
This is a Serious Meme about Disability from Mon
1. The illness I live with is: Post Traumatic Stress Disorder and MCS multiple chemical sesitivity Syndrome
Slipppy reality when anxious Digestive Angst migraines things best not discussed and overall PAIN.
2. I was diagnosed with it in the year: 2005 for Complex PTSD 2010 for mcs
3. But I had symptoms since: 2003 for PTSD and since i was 8 for mcs
4. The biggest adjustment I’ve had to make is: couldn't keep going to work. Couldn't live in Melbourne. Can't cope with being with any "Significant other" properly. It .
5. Most people assume: They know what is wrong with us, or what happened. Or what they would do or would have done if they were me.
6. The hardest part about mornings are: Hard to wake up and get out of bed, most days.
7. My favourite medical TV show is: dumb question. Why do I have to watch medical shows? (Does Bones count?)
8. A gadget I couldn’t live without is: computer. Well really the fridge. I mean imagine no fridge? It would be very hard.
9. The hardest part about nights are: nightmares. Finding it hard to get to sleep.
10. Each day I take __ pills & vitamins.
11. Regarding alternative treatments I: they never worked. Only proper ptsd treatment works. And also they are still learning how to treat ptsd properly coz like they never thought it was serious, they thought people had a yelow streek or were cowards and shell shock coz weak and stuff. Now at least they know its real coz the Vietnam Vets were very um angry and made people listen. But they helped all of us, not just the soldiers, but all of us traumatised people.
12. If I had to choose between an invisible illness or visible I would choose: Neither. Coz both are too hard to live with. Well maybe invisible coz we do lots of things invisibley.
13. Regarding working and career: we kept trying until it was too hard.Migraines Vomit and so much Freaking out. And now we just live. Just live.
14. People would be surprised to know: How hard it is every day. How humiliating it is to be so ill and need so much help.
15. The hardest thing to accept about my new reality has been: Not working and not being as Close to my melbourne pepole. I miss Feeling Normal ish.
16. Something I never thought I could do with my illness that I did was: A radio Show With Rod
17. The commercials about my illness: well all the "If you feel bad, tell your doctor or ring this number" But the numbers are always busy, or if they do pick up, the person on the other end goes "Oh that must be so hard." As if that should help us from feeling suicidal to tell us we must find it so hard.
18. Something I really miss doing since I was diagnosed is: I don't know. I miss being able to be cope in shopping centers.
19. It was really hard to have to giveup. My lover and spending more time with them.
20. A new hobby I have taken up since my diagnosis is: Knitting For Self sooothing.
21. If I could have one day of feeling normal again I would: NFI
22. My illness has taught me: Nothing much. Why should it? Am I supposed to Learn and be Noble now because I have a Lifechanging Illness? Go fuck yourself if you think that.
Well maybe that is what I've learnt! People expect things from you when you're chronically ill, or disabled. You are expected to make them feel admiration for you for how you handle it. You are expected to go out and Do Things to prove that actually after all your life isn't so bad, so they don't have to feel guilty for their life being actually not so bad after all. You are expected to make them feel ok. Make them feel good about life. Give them some Secret about the Meaning of Life that you've learned the unbearably hard way that they can just learn from you saying something Profound to them.
People WANT from you when you're ill or disabled. They want you to make them feel ok about the fact you're disabled and suffering and so disadvantaged when they aren't.
This is tigers answer but I;m going go with it.
23. Want to know a secret? One thing people say that gets under my skin is:
Oh the absolute best is, when I say I've got Post Traumatic Stress Disorder and they say "So what happened?"
And I tell them.
And they go grey, and look very ill. And I think "So, did you think I got it from stubbing my big toe or something, you moron." They get what they deserve for their insensitivity. What a question to ask? So what traumatised you so badly you have a severe illness as a result?" WHAT do they think they will hear???
.
And I tell because .... it was secrets that enabled it to happen in the first place. Secrets and silence. So I tell. I talk.
Tigers again I so do not tell folk I have only just gotten over blaming myself for His actions.
.
24. But I love it when people: Just let me be me instead of trying to fix me. The best psychiatrists in Australia can't fix me. I know. Shall I name names of who I've seen? You'll recognise them from the news. Why the fuck do you think you can with your fairy wands or your pop-psychology from some American sit-com full of unhealthy emotional messages?
Just let me be. If I want to share something then let me. If I don't, then let me not. Just let me be me. Let me be and do what I need to do and be. Let me be ill when I'm ill. Let me be happy when I'm happy.
25. My favourite motto, scripture, quote that gets me through tough times is: My Boys and my Home
26. When someone is diagnosed I’d like to tell them: get treatment. It's out there, it's good, it's improving every day. It will make your life worth living - yes even if it is for the first time ever. It's hard, and long, but it works. (And if it isn't working you need a better health team. Don't accept poor-quality treatment. Keep insisting on the best.) But above and beyond all of that. YOU DESERVE TO RECOVER. Maybe like me you'll never recover your health, or your ability to work, or your ability to ____ but you can have a life worth living. HANG IN THERE. Again stealing Tigers words
27. Something that has surprised me about living with an illness is: The changes and the heartlessness of a lot of humans,
28. The nicest thing someone did for me when I wasn’t feeling well was: maked me a cup of tea. Or dinner. Or breakfast. Or lunch. Or did my laundry, or changed my sheets because it's been weeks since I was well enough to change them myself. Give me a gentle hug. Drive me to my counsellor. Tea. Did I mention tea?
29. I’m involved with Invisible Illness Week because: *looks at Mon*
30. The fact that you read this list makes me feel: Annoyed wanted to be up have to go don antlers and help a Mate with Christmas in Morwell promo.
1. The illness I live with is: Post Traumatic Stress Disorder and MCS multiple chemical sesitivity Syndrome
Slipppy reality when anxious Digestive Angst migraines things best not discussed and overall PAIN.
2. I was diagnosed with it in the year: 2005 for Complex PTSD 2010 for mcs
3. But I had symptoms since: 2003 for PTSD and since i was 8 for mcs
4. The biggest adjustment I’ve had to make is: couldn't keep going to work. Couldn't live in Melbourne. Can't cope with being with any "Significant other" properly. It .
5. Most people assume: They know what is wrong with us, or what happened. Or what they would do or would have done if they were me.
6. The hardest part about mornings are: Hard to wake up and get out of bed, most days.
7. My favourite medical TV show is: dumb question. Why do I have to watch medical shows? (Does Bones count?)
8. A gadget I couldn’t live without is: computer. Well really the fridge. I mean imagine no fridge? It would be very hard.
9. The hardest part about nights are: nightmares. Finding it hard to get to sleep.
10. Each day I take __ pills & vitamins.
11. Regarding alternative treatments I: they never worked. Only proper ptsd treatment works. And also they are still learning how to treat ptsd properly coz like they never thought it was serious, they thought people had a yelow streek or were cowards and shell shock coz weak and stuff. Now at least they know its real coz the Vietnam Vets were very um angry and made people listen. But they helped all of us, not just the soldiers, but all of us traumatised people.
12. If I had to choose between an invisible illness or visible I would choose: Neither. Coz both are too hard to live with. Well maybe invisible coz we do lots of things invisibley.
13. Regarding working and career: we kept trying until it was too hard.Migraines Vomit and so much Freaking out. And now we just live. Just live.
14. People would be surprised to know: How hard it is every day. How humiliating it is to be so ill and need so much help.
15. The hardest thing to accept about my new reality has been: Not working and not being as Close to my melbourne pepole. I miss Feeling Normal ish.
16. Something I never thought I could do with my illness that I did was: A radio Show With Rod
17. The commercials about my illness: well all the "If you feel bad, tell your doctor or ring this number" But the numbers are always busy, or if they do pick up, the person on the other end goes "Oh that must be so hard." As if that should help us from feeling suicidal to tell us we must find it so hard.
18. Something I really miss doing since I was diagnosed is: I don't know. I miss being able to be cope in shopping centers.
19. It was really hard to have to giveup. My lover and spending more time with them.
20. A new hobby I have taken up since my diagnosis is: Knitting For Self sooothing.
21. If I could have one day of feeling normal again I would: NFI
22. My illness has taught me: Nothing much. Why should it? Am I supposed to Learn and be Noble now because I have a Lifechanging Illness? Go fuck yourself if you think that.
Well maybe that is what I've learnt! People expect things from you when you're chronically ill, or disabled. You are expected to make them feel admiration for you for how you handle it. You are expected to go out and Do Things to prove that actually after all your life isn't so bad, so they don't have to feel guilty for their life being actually not so bad after all. You are expected to make them feel ok. Make them feel good about life. Give them some Secret about the Meaning of Life that you've learned the unbearably hard way that they can just learn from you saying something Profound to them.
People WANT from you when you're ill or disabled. They want you to make them feel ok about the fact you're disabled and suffering and so disadvantaged when they aren't.
This is tigers answer but I;m going go with it.
23. Want to know a secret? One thing people say that gets under my skin is:
Oh the absolute best is, when I say I've got Post Traumatic Stress Disorder and they say "So what happened?"
And I tell them.
And they go grey, and look very ill. And I think "So, did you think I got it from stubbing my big toe or something, you moron." They get what they deserve for their insensitivity. What a question to ask? So what traumatised you so badly you have a severe illness as a result?" WHAT do they think they will hear???
.
And I tell because .... it was secrets that enabled it to happen in the first place. Secrets and silence. So I tell. I talk.
Tigers again I so do not tell folk I have only just gotten over blaming myself for His actions.
.
24. But I love it when people: Just let me be me instead of trying to fix me. The best psychiatrists in Australia can't fix me. I know. Shall I name names of who I've seen? You'll recognise them from the news. Why the fuck do you think you can with your fairy wands or your pop-psychology from some American sit-com full of unhealthy emotional messages?
Just let me be. If I want to share something then let me. If I don't, then let me not. Just let me be me. Let me be and do what I need to do and be. Let me be ill when I'm ill. Let me be happy when I'm happy.
25. My favourite motto, scripture, quote that gets me through tough times is: My Boys and my Home
26. When someone is diagnosed I’d like to tell them: get treatment. It's out there, it's good, it's improving every day. It will make your life worth living - yes even if it is for the first time ever. It's hard, and long, but it works. (And if it isn't working you need a better health team. Don't accept poor-quality treatment. Keep insisting on the best.) But above and beyond all of that. YOU DESERVE TO RECOVER. Maybe like me you'll never recover your health, or your ability to work, or your ability to ____ but you can have a life worth living. HANG IN THERE. Again stealing Tigers words
27. Something that has surprised me about living with an illness is: The changes and the heartlessness of a lot of humans,
28. The nicest thing someone did for me when I wasn’t feeling well was: maked me a cup of tea. Or dinner. Or breakfast. Or lunch. Or did my laundry, or changed my sheets because it's been weeks since I was well enough to change them myself. Give me a gentle hug. Drive me to my counsellor. Tea. Did I mention tea?
29. I’m involved with Invisible Illness Week because: *looks at Mon*
30. The fact that you read this list makes me feel: Annoyed wanted to be up have to go don antlers and help a Mate with Christmas in Morwell promo.