ME/CFS Awareness
ME/CFS Awareness week is 11th - 17th May, with ME/CFS Awareness Day on 12th May. Over the next few weeks I'll be posting links, information, videos, art and anything else I find of interest relative to ME/CFS. I know a few people who read my blog are also blighted by this condition. If you would like to 'wear' a blue ribbon and show support for the awareness campaign, fantastic! :) and here are a few places which provide some extra information:
Rachelcreative
Blog: http://rachelcreative.wordpress.com/
Rachel has created various ME/CFS Aware badges which are available on her ME/CFS Awareness website. She is also listing events, and information from around the UK: http://meaware.wordpress.com/
Thanks to Rachel, I also found out about http://www.edmesh.org.uk/ (I didn't even know they existed!) and have offered to help them out as a volunteer during their events.
The Blue Ribbon Campaign for ME/CFS was created by Andrea Martell, Home: http://www.blueribboncampaignforme.org/Home_Page.html
It's gaining momentum on Facebook:
Join the cause (Support Blue Ribbon Campaign):
http://apps.facebook.com/causes/275904
Join the group (Blue Ribbon Campaign for ME/CFS patients around the world):
http://www.facebook.com/group.php?gid=87734721755
Join the group event (Blue Ribbon Campaign for ME/CFS awareness week):
http://www.facebook.com/group.php?gid=87734721755#/event.php?eid=81296836642&ref=mf
"Dr Paul Cheney, somewhat of a legend in ME/CFS circles for his interesting work, is finally launching own site: http://cheneyresearch.com/"
No information there at present, but you can sign up for a research newsletter.
This link came from Greenwords
Laura Dunks alerted me to 2 petitions that are currently in circulation.
The first is to No.10 - http://petitions.number10.gov.uk/AttendIiME2009/#detail
"to petition the Prime Minister to send the Minister Of Health, Medical Research Council delegates and the Chief Medical Officer to attend the INVEST in ME Conference 29th May 2009 London.This closes on 1st May, so support needed ASAP, Thanks!
The second petition to CDC "CFS research should not involve the empirical definition (2005)"
http://www.ipetitions.com/petition/empirical_defn_and_CFS_research/index.html
Has more implications on the other side of the Atlantic I believe, but shouldn't go unnoticed all the same. (I'm going to have to come back to it in a couple of days because there's far too much condensed info for my fuzzy brain to take in all at once.)
Maija Haavisto has had a book published regarding treatments for ME/CFS and Fibromyalgia. More information about "Reviving the Broken Marionette" can be found here: http://www.brokenmarionettebook.com/
I am hoping I have credited all the correct people, provided all the right links and that some of you might be interested in taking part. If not yourselves, you might know someone else who might be interested in these links.
Finally, I'm sorry if I've annoyed anyone by taking up a chunk of their friends page with this sizeable post. But knowing me is knowing that this issue is important to me. I've been embarrassed about this condition for too long and just this once, don't want to hide behind a cut tag. I'm hoping I have your understanding... and you allow me this one off ;) Thanks all xx
Rachelcreative
Blog: http://rachelcreative.wordpress.com/
Rachel has created various ME/CFS Aware badges which are available on her ME/CFS Awareness website. She is also listing events, and information from around the UK: http://meaware.wordpress.com/
Thanks to Rachel, I also found out about http://www.edmesh.org.uk/ (I didn't even know they existed!) and have offered to help them out as a volunteer during their events.
The Blue Ribbon Campaign for ME/CFS was created by Andrea Martell, Home: http://www.blueribboncampaignforme.org/Home_Page.html
It's gaining momentum on Facebook:
Join the cause (Support Blue Ribbon Campaign):
http://apps.facebook.com/causes/275904
Join the group (Blue Ribbon Campaign for ME/CFS patients around the world):
http://www.facebook.com/group.php?gid=87734721755
Join the group event (Blue Ribbon Campaign for ME/CFS awareness week):
http://www.facebook.com/group.php?gid=87734721755#/event.php?eid=81296836642&ref=mf
"Dr Paul Cheney, somewhat of a legend in ME/CFS circles for his interesting work, is finally launching own site: http://cheneyresearch.com/"
No information there at present, but you can sign up for a research newsletter.
This link came from Greenwords
Laura Dunks alerted me to 2 petitions that are currently in circulation.
The first is to No.10 - http://petitions.number10.gov.uk/AttendIiME2009/#detail
"to petition the Prime Minister to send the Minister Of Health, Medical Research Council delegates and the Chief Medical Officer to attend the INVEST in ME Conference 29th May 2009 London.This closes on 1st May, so support needed ASAP, Thanks!
The second petition to CDC "CFS research should not involve the empirical definition (2005)"
http://www.ipetitions.com/petition/empirical_defn_and_CFS_research/index.html
Has more implications on the other side of the Atlantic I believe, but shouldn't go unnoticed all the same. (I'm going to have to come back to it in a couple of days because there's far too much condensed info for my fuzzy brain to take in all at once.)
Maija Haavisto has had a book published regarding treatments for ME/CFS and Fibromyalgia. More information about "Reviving the Broken Marionette" can be found here: http://www.brokenmarionettebook.com/
I am hoping I have credited all the correct people, provided all the right links and that some of you might be interested in taking part. If not yourselves, you might know someone else who might be interested in these links.
Finally, I'm sorry if I've annoyed anyone by taking up a chunk of their friends page with this sizeable post. But knowing me is knowing that this issue is important to me. I've been embarrassed about this condition for too long and just this once, don't want to hide behind a cut tag. I'm hoping I have your understanding... and you allow me this one off ;) Thanks all xx