That's the first I've seen of the story...It's either been knocked off of my bbc headlines, or never made it up to the top however many list. It's a horribly sad story...but I think the issue with the response, or lack there of, lies partially in the fact that, as far as these poor kids go, like you said, it's incurable and eventually fatal. There's not much we can do... :\ Preventing another such instance is possible, I suppose, and would take a LOT of effort on an international level. Thanks for posting the story...I'll be praying for the children and their care givers as well.
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