When you look into your past and realise that your future ain't a whole lot better...

Feb 10, 2009 02:00

For someone who thrives off of physical affection, not being able to stand to have anyone touch her is fucking excruciating. As of right now, it hurts to wear clothes. The lightest touch hurts like a bitch. I've reached a lot of low points in dealing with this whole fibro thing, but the lowest has been when I cannot stand to be touched. I still ( Read more... )

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crystalra1ndr0p February 10 2009, 16:33:07 UTC
Do they have you on any medication for your fibro? They just changed my anti-inflammatory and muscle relaxer and I think it's helping to dull the pain a lot. I'm sorry that yours is so severe.

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imacrazybeauty February 11 2009, 00:40:50 UTC
They have me on muscle relaxants, which sometimes help, sometimes don't. My doctor wants me to go for massage therapy for chronic back pain, but my problem isn't in my back 90% of the time. I'm pretty much getting nowhere with my doctors as far as my fibro goes. No one will even give me a definitive diagnosis because I'm only 19, though every single one of my symptoms points to fibro. I'm either lying, too young, or it has to be drug induced lupus, because all the tests for that one came back negative. I'm actually really lucky that my doctor even gave me pain medication, because I've been fighting for three years for them to do something and this is the best I got ( ... )

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crystalra1ndr0p February 11 2009, 01:28:25 UTC
They just changed my muscle relaxer to Amrix and it's been helping. And yeah, massages don't always help. Sometimes they've had to press so hard that I've had handprint shaped bruises later, and I'm black!!!

I got diagnosed with fibro when I was 18 after they did blood tests and most of them were normal. Have you ever been to a rheumatologist or bone and joint doctor? If not, ask your doctor to refer you to one. Those kinds of doctors have taken me more seriously and tried different kinds of medication to help, and when I have issues like my shoulders knotting up and limiting my range of motion they send me to physical therapy.

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imacrazybeauty February 11 2009, 04:32:51 UTC
I'm on Flexiril right now and it's adequate. It's more effective than the OTC crap I had to settle with before. I don't really trust massage therapy, cos I've been for a massage once when I saw an orthopedic surgeon for my hips and I was so sore the next day it was unreal.

My rheumatologist is the one that accused me of lying about being in pain. I don't know what she thought I was hoping to gain if I was lying about it but I haven't gone back to see her and my doctor has said nothing about referring me to any more specialists. I'm going for bloodwork soon and when I go back and see her within the next month-ish, I'm telling her to cut the bullshit and do something, cos I know my body well enough to know that something isn't right and it's more than just a simple problem like exercising more. Very, very few doctors here in Canada acknowledge Fibromyalgia as an actual disorder. My aunt's friend has it and she fought for years to be properly diagnosed and treated.

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