pardon my intrusion into your personal journal but after reading your post in april 2005 I wanted to send something your way but in a more private way. As a mom I can't imagine what it would be like finding out my child was ill or had the potential to become ill. Reading that broke my heart a little, not understanding the full extent of the illness myself I perused the site and I had to stop. I would just like to extend my best wishes and hopes of a very happy, healthy and wonderful future for your son. He is stunning and beautiful.
Thank you very, very much. Its a hard battle to just try and overcome the emotion I have everyday, but I will admit that everyday gets better. My theory is yes, he has a fatal disease, but he's fine now and he will be for a long time. I want to say I don't think about the future, but thats a lie. I will say that I focus on the present. Also, it helps that I'm trying to get involved in volunteering and other aspects with the disease.
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But, man! He's so cute. And all day I was mesmerized by the long long fingers.
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Anyways, thanks for sending me your kind words :)
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