NOT MUSCULAR DYSTROPHY.

Sep 14, 2012 08:15

His CK test was normal -- it's not MD. THANK ALL THE GODS ABOVE AND BELOW. However, his TSH (thyroid stimulating hormone) was high, so he might be hypothyroid. He also might not be -- 70% of kids with a reading at his level come back normal on a rescreen -- but hypothyroidism can cause breathing problems and muscle weakness, and I'm hypothyroid ( Read more... )

alden

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Comments 10

purlewe September 14 2012, 15:37:37 UTC
My heart started beating again. So glad to hear where you are.

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nou September 14 2012, 18:10:21 UTC
So very glad to hear this.

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dandelion_diva September 14 2012, 18:15:34 UTC
That's wonderful news. :)

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browngirl September 14 2012, 19:21:09 UTC
*hugs you in glad relief*

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johnpalmer September 14 2012, 19:37:31 UTC
First, I'm glad to hear the good news.

Second - I've seen what almost looked like a marketing site for pituitary surgery, and they suggested that it *was* pretty safe and easy - maybe even outpatient - to fix pituitary tumors. Is it really that simple? Because I have hormonal issues that might be pituitary related, and so that's been kind-of on my mind.

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kathrynt September 14 2012, 23:30:06 UTC
It depends on the surgery, obviously. The interesting thing about brain surgery is that a lot of the danger comes from 1) infection and 2) moving around or cutting through the thinky parts of your brain, which are on top. So for pituitary surgery, they usually go in through your nose, UNDER the thinky parts. If the surgery needs to be done on a part of the pituitary that is easy to access that way, then yeah, the impact can be fairly minimal -- particularly compared to your standard craniotomy procedure.

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