Comments | kenezbian: A Low Day

kenezbian

A Low Day

Aug 23, 2012 13:16

We have had scheduling issues all summer with everything. I have done my best to give Holden what he needs - routine, structure, plans - and it's been erratic and awful.

Our PCA, we'll call her S, was kind of flaky. It got to be routine that she'd cancel once a week and then when it turned into twice a week two weeks in a row I was about to tattle ( Read more... )

manicure

Comments 6

zsomeone August 23 2012, 21:43:48 UTC

Some days you have terrible luck. Hopefully the parts that can work themselves out will do so.

kenezbian August 23 2012, 23:58:15 UTC

Good news: my dad surprised me and brought me out to get school supplies for Holden.

Bad news: it was sort of a ploy to get me away from Alex and the kids for 5 minutes so he could tell me my grandpa has prostate cancer and it's metastasized to his bones. Apparently he didn't tell anyone.

Extra bonus: school called and they still don't have an aide for Holden. OMG I want to crawl in a hole and die.

zsomeone August 24 2012, 02:22:49 UTC

Man, life has it in for you. Kick it's ass!

zsomeone August 25 2012, 03:54:50 UTC

http://books.google.com/books?id=KHr_FMNM6-UC&printsec=frontcover#v=onepage&q&f=false
Sometimes I do searches to see if some of my abnormalness is actually normal, landed on this book part. I don't care enough to buy it, but found the parts you can read very good.
Just passing it on.

I am a LJ noob, but not as an autism mom moyra_aisling September 2 2012, 11:00:12 UTC

I have run the gamut with caregivers and I am glad I can now rely on family. The best advice is that this to shall pass. It looks like you already have a date to get your nails done so I am glad you have self care taken care of. Remember to breath and don't feel bad about your thoughts. Honestly they are natural and you are brave for sharing them. Today I was just thinking of what a horrible mom I would be if my son wasn't disabled. It is like I am give this huge amount of grace because of his autism. The thought that has been going through my head all day is Guilt: The Perpetual Gift Of Motherhood.......

Re: I am a LJ noob, but not as an autism mom kenezbian September 2 2012, 15:14:31 UTC

Thank you for the lovely comment! Guilt really is the perpetual gift of motherhood, isn't it? LOL

I actually do my own nails - it's much cheaper than going to the salon and I can still do art as long as it's easy. It helps that I have nice natural nails as well, so I don't need to get acrylics.

The good news is we FINALLY have a PCA that's willing to work with our schedule and school starts Tuesday, so Holden's gonna have the structure he needs. I just gotta get through the long weekend!