klwilliams

An idea

klwilliams Aug 15, 2016 10:27

It occurred to me that since the MS cure is actually a well understood chemotherapy used for leukemia patients, oncologists who treat leukemia would understand the risks vis-a-vis something like the JC virus/PML. Do oncologists check for that? Do their patients develop PML ( Read more... )

ms

Leading with the lede

klwilliams Aug 09, 2016 13:38

My neurologist has submitted the information for my referral to the stem cell replacement chemotherapy. I've asked our friend in the NHS to check with the hospital about JC and PML. Now it's waiting. (It might be a short wait. They might immediately come back and say I'm excluded for any number of reasons.)

ms

Thursdays are odd

klwilliams Aug 04, 2016 12:14

My husband pointed out that, in the European way, today's date is 4/8/16, or 2^2, 2^3, 2^4 ( Read more... )

ms

Just the FAQs, ma'am

klwilliams Aug 03, 2016 11:50

I've read the FAQ about the treatment I want to have, and I think I fit the criteria for treatment. I meet with my neurologist this afternoon to see what he thinks. And even if he does agree, he needs to send in a packet, and I need to get chosen. And it's not free for me, but I may have a friend who can help. ms

Be careful what you ask for

klwilliams Aug 01, 2016 11:06

I asked Helen, Chaz's good friend who happens to be an NHS doctor, to check with a teaching hospital in the UK that has tested using a leukemia treatment to cure MS. Would they treat an American, outside of a study? It turns out that yes, they would, if I pass their preliminary tests ( Read more... )

ms

"The Mystic Marriage" by Heather Rose Jones

klwilliams Jul 21, 2016 12:22

Set in the European country of Alpennia (somewhere near Ruritania, or so I've heard), this novel is set a couple of years after Daughter of Mystery. Margerit and Barbara still appear as point-of-view characters, but Antuniet and Jeanne, secondary but important characters from the first book, are center stage ( Read more... )

review

Different kind of dancing

klwilliams Jul 09, 2016 11:21

On Thursday I found myself in a tall building in San Francisco when an announcement came over the loudspeakers: everyone please go down four floors. Yes, I had my walker. Fortunately the stairs were wide, but there were two flights for every floor. People offered to carry my walker for me, but I steadfastly hung onto it. Until I got down four ( Read more... )

Apple Watch failure

klwilliams Jul 08, 2016 19:12

Yesterday I walked down seven floors (14 flights) of stairs, and Apple Watch didn't count any of them on its "flights" report. (I was in SF and the HVAC system began releasing some nasty smelling gas, so everyone in the building was told to go down below a certain level and wait. Since they didn't know if/how the elevators were affected, we had to ( Read more... )

At a crossroads, or in the middle of the target?

klwilliams Jun 22, 2016 19:31

I'm in an odd place, with many choices. Or maybe one choice, really ( Read more... )

ms

Mac and Barry

klwilliams Jun 05, 2016 12:04

A few years ago, around the time we got married, I googled "Mac and Barry". I wasn't surprised to get a page of links to Chaz's LJ, because the boys were a frequent topic. When I tried that search again today the top result was to a photo on Chaz's Flickr page, but nothing else about the boys. I like MAC brand makeup and the ease of posting photos ( Read more... )

boys