Lexi might have Lupus

[lostexil]

I took my Girl Scouts to South Padre Island for our annual beach trip and while we were there Lexi's face started falling off. I don't know how else to describe it...pieces of her skin just started coming off. I took her to the Dermatologist today and they were perplexed (as usual) but really think she has Lupus. They took a biopsy and put two

Comments

[phillygirl2873]

*hugs* I hope it's not lupus.

[lostexil]

Thanks Mel! I'll keep you posted. *hugs back*

[stufsocker]

*hugs* that's crazy! my mom has lupus and has never had that kind of reaction. I'm not an expert, and I know that there's a correlation between a lupus-driven butterfly rash and sun exposure, but it doesn't look like that. I hope it's not lupus and I hope they figure out what it is immediately, if nto sooner.
*more hugs*

[lostexil]

*hugs back* I hope it's not lupus too, but none the less, she still has an auto-immune disease. It would be nice to know exactly what it is. I posted this in a reply below...

"They are waiting on the biopsy results but it seems that our next visit will be with a rheumatologist, which Lexi has not seen before. The dermatologist told me they are ordering an anticoagulant screeing test (she's never had this before either). Her rashes in the past presented as a "shingles" type rash. She has never had the typical butterfly rash. I've been on the lookout for it for years...ever since her non-specified AI diagnosis. We sort of just analyze symptoms as they come up. She was tested for celiac earlier this summer with a negative result. That test alone was $485, after insurance. It's a confusing and expensive world we live in, especially for people with chronic medical conditions. *sigh*
"
*and more hugs back at'cha*

[lostexil]

Oh, that pic was taken today and the spots look ten times better than when they first appeared last Wednesday. I started treating the spots while we were in SPI with her RX antibiotic cream and xylogel. At least they aren't oozing anymore.

[inlaterdays]

*hugs* and good thoughts for you and your beautiful Lexi. I hope the doctors figure out what it is soon.

[lostexil]

Thanks! Me too! *hugs back*

[lostexil]

They are waiting on the biopsy results but it seems that our next visit will be with a rheumatologist, which Lexi has not seen before. The dermatologist told me they are ordering an anticoagulant screeing test (she's never had this before either). Her rashes in the past presented as a "shingles" type rash. She has never had the typical butterfly rash. I've been on the lookout for it for years...ever since her non-specified AI diagnosis. We sort of just analyze symptoms as they come up. She was tested for celiac earlier this summer with a negative result. That test alone was $485, after insurance. It's a confusing and expensive world we live in, especially for people with chronic medical conditions. *sigh*

I did well on my cert. exam. I got passing scores on my math and reading portion. Now I'm just wating for my writing portion to be graded, but I have no worries. Yeah!

Oh, wow..

[katelennon]

I hope that the doctors get the problem figured out quickly and get Lexi the type of treatment that she needs.

Good luck on the Exam! You're going to ROCK!!

Re: Oh, wow..

[lostexil]

Thanks! Me too!

I passed my exams, yeah!!! *cartwheels*