CFS Video
Here's a nice video sent in by listener Bucky Tripp *clangs and whistles*...
This is an anaesthesiologist. He really does have a feel for people suffering from CFS. But, he gets a few things wrong. And I can't let them by, because then I would be thrown in a dungeon by HAMcurity, or whatever that Ministry is.
For one thing, it's not like CFS people are always lonely, any more than they suffer from depression. They are too burnt out to feel depressed, and so they are normally way too ill to feel lonely, or blue. Maybe the feeling of dying alone, but everybody dies alone. Maybe the knowledge that no one is helping them, absolutely. But that isn't really loneliness. And, these people usually don't lack purpose, because, when they are not purposefully fighting the illness so valiantly, they find purpose in other projects, if they can.
If they are suspended in between, for hours and hours, incapacitated, then they can think about the social things they are missing out on, in which case they might feel lonely. It depends on what kind of person has this illness. Some people will feel more loneliness than others. Some none at all - because the whole point is to get the heck away from people, who are generally ignorant, rude and stress-inducing. I have noooo loneliness for that, myself.
(AND THIS IS NOT MERE FATIGUE, like the plague is not the common cold).
Having a pet helps! And is a lot of work, time. Which might sometimes distract from more urgent things.
Ths guy gets it right when he says that CFS people basically just needs assurance that people are still there, in support, open to their needs - and NOT, instead, pushing an agenda, insisting they are wrong about everything, as if they have some kind of peronsal problem. And, don;t lecture us about how you are always right, when you never are. Because, if you are talking that way, you right-off have no clue what CFS is, or what you are talking about. Lol. All of your, "right," answers will only lead to GREAT HARM if followed though on.
Another thing he misses is that people with CFS actually must avoid most anesthetics and other meds. When they concern themselves about this, it doesn't mean they will heal less well after a surgery. That sounds like magical thinking from someone wanting to push his drugs and services, subconsciously, like's the authority now. I see everybody doing this sort of thing.
But he is wrong. Anaesthetics are generally bad for people w/ CFS. Many of them increase endorphins, or cause other changes, which are then followed by attempts by cells to regenerate, involving protein kinase, ATP and lactic acid - all which are directly associated with increased CFS symptoms. Same for any attempts by cells to regenerate after any exertion, stress, etc., and that includes surgery, most definitely. Surgery causes unimaginable CFS symptoms.
And he doesn't see to know that CFS people usually need only a fraction of the normal dose of (suitable) anaesthetics - like 1/5th dose - to achieve the same results as normal people. But, it's touch and go. So, whenever possible, local, not general, anaesthetics should be used for people w/ CFS.
Other than these outstanding flubs, this guy is pretty great, and really does try to understand, to care and to communicate. I think this is a very good video, mostly on, and sometimes off. I may pass it along.
The loneliness thing might be something of a projection, and garnered mainly from the times CFS patients are well enough to be up and about, able to talk about more mundane things like the easy feelings most normal humans process. In fact, isolation is not some kind of psychological failure... Isolation from harsh light, from abrupt or loud sunds, from unexpected change, from PEOPLE - is normally absolutely necessary to CFS, with its long, long stretches of pain, silence and endurance. Biding time until able to process more robustly.
Similar to people with migraines, which is a regular symptom in CFS.
On the other hand, receiving no help or support, and spending years in bed, can be devastating, when one wakes up enough to look around and realise their situation. Absolutely devastating.
Being told what to do, as if one is choosing to be some kind of foolish idiot, masochistically wanting to be forced around? Get with the programme, people. They have almost zero fuel. Zero ease. Zero comfort. You'd get further kicking a dead horse.
https://www.youtube.com/live/sbr3-envQxA?feature=share
They are forever needing to rebuild steam, every second by second, minute by minute, day by day, and on and on. Over and over again, like the spider trying to get back up the water spout. Positively Sisyphan.
This is an anaesthesiologist. He really does have a feel for people suffering from CFS. But, he gets a few things wrong. And I can't let them by, because then I would be thrown in a dungeon by HAMcurity, or whatever that Ministry is.
For one thing, it's not like CFS people are always lonely, any more than they suffer from depression. They are too burnt out to feel depressed, and so they are normally way too ill to feel lonely, or blue. Maybe the feeling of dying alone, but everybody dies alone. Maybe the knowledge that no one is helping them, absolutely. But that isn't really loneliness. And, these people usually don't lack purpose, because, when they are not purposefully fighting the illness so valiantly, they find purpose in other projects, if they can.
If they are suspended in between, for hours and hours, incapacitated, then they can think about the social things they are missing out on, in which case they might feel lonely. It depends on what kind of person has this illness. Some people will feel more loneliness than others. Some none at all - because the whole point is to get the heck away from people, who are generally ignorant, rude and stress-inducing. I have noooo loneliness for that, myself.
(AND THIS IS NOT MERE FATIGUE, like the plague is not the common cold).
Having a pet helps! And is a lot of work, time. Which might sometimes distract from more urgent things.
Ths guy gets it right when he says that CFS people basically just needs assurance that people are still there, in support, open to their needs - and NOT, instead, pushing an agenda, insisting they are wrong about everything, as if they have some kind of peronsal problem. And, don;t lecture us about how you are always right, when you never are. Because, if you are talking that way, you right-off have no clue what CFS is, or what you are talking about. Lol. All of your, "right," answers will only lead to GREAT HARM if followed though on.
Another thing he misses is that people with CFS actually must avoid most anesthetics and other meds. When they concern themselves about this, it doesn't mean they will heal less well after a surgery. That sounds like magical thinking from someone wanting to push his drugs and services, subconsciously, like's the authority now. I see everybody doing this sort of thing.
But he is wrong. Anaesthetics are generally bad for people w/ CFS. Many of them increase endorphins, or cause other changes, which are then followed by attempts by cells to regenerate, involving protein kinase, ATP and lactic acid - all which are directly associated with increased CFS symptoms. Same for any attempts by cells to regenerate after any exertion, stress, etc., and that includes surgery, most definitely. Surgery causes unimaginable CFS symptoms.
And he doesn't see to know that CFS people usually need only a fraction of the normal dose of (suitable) anaesthetics - like 1/5th dose - to achieve the same results as normal people. But, it's touch and go. So, whenever possible, local, not general, anaesthetics should be used for people w/ CFS.
Other than these outstanding flubs, this guy is pretty great, and really does try to understand, to care and to communicate. I think this is a very good video, mostly on, and sometimes off. I may pass it along.
The loneliness thing might be something of a projection, and garnered mainly from the times CFS patients are well enough to be up and about, able to talk about more mundane things like the easy feelings most normal humans process. In fact, isolation is not some kind of psychological failure... Isolation from harsh light, from abrupt or loud sunds, from unexpected change, from PEOPLE - is normally absolutely necessary to CFS, with its long, long stretches of pain, silence and endurance. Biding time until able to process more robustly.
Similar to people with migraines, which is a regular symptom in CFS.
On the other hand, receiving no help or support, and spending years in bed, can be devastating, when one wakes up enough to look around and realise their situation. Absolutely devastating.
Being told what to do, as if one is choosing to be some kind of foolish idiot, masochistically wanting to be forced around? Get with the programme, people. They have almost zero fuel. Zero ease. Zero comfort. You'd get further kicking a dead horse.
Click to viewhttps://www.youtube.com/live/sbr3-envQxA?feature=share
They are forever needing to rebuild steam, every second by second, minute by minute, day by day, and on and on. Over and over again, like the spider trying to get back up the water spout. Positively Sisyphan.