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Comments 15

lunacow September 12 2014, 23:50:14 UTC
Since you've been dealing with this constellation of problems for so long without having a definitive cause, it's great that there's finally a diagnosis. If only it were something with a simple cure, but at least you're already doing the right things to make the condition as easy as possible to live with. I hope you're able to do the PT and that it helps, and good news about the medical marijuana.

*hugs*

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mamagotcha September 13 2014, 02:07:16 UTC
Thank you. I've loved what you've written about swimming and writing, and if I can ever get back to the point that I can put my head into water without immediately setting off another infection, I'd like to try it. (I wonder if there are any kinds of waterproof earplugs? there must be...). Miss you guys, wish we could come play at Equinox! Pass along my regards to all, please! xoxo

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mh75 September 13 2014, 04:52:59 UTC
Yes, there are, or probably what is good enough. We got the following for William when he was having noise issues at the pool. You soften the material and then push it into your ear and it forms into the shape of your ear. (Aside, it was super useful. The ear plugs kept out some of the noise, and his ability to behave during his lessons turned around on a dime. Totally worth it.)
http://www.earbandit.com/go2/puttybuddies.cfm

You could also do the headband or a swim cap for added protection.

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mamagotcha September 13 2014, 05:56:35 UTC
Oh, those look perfect! I've just been using cotton balls in the shower, and they have been less than ideal. I'm embarrassed to admit I didn't think of doing a search for these; I should have known there was something out there. Thanks, Megan! :D

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Paula here anonymous September 13 2014, 00:30:05 UTC
(((hugs)))), Just call me a slogger.

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Re: Paula here mamagotcha September 13 2014, 02:05:32 UTC
Hugs, Paula, and thanks!

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tarrestrial September 13 2014, 02:57:02 UTC
My sister has been struggling with fibro for 7 years or so. Some days are better than others. I can ask her about her supplement regimen, if you like. I sympathize with your emotional struggle as well. I sometimes feel similarly about my vision issues. I don't want to be only a blind woman or even primarily a blind woman, but sometimes it is necessary to disclose my disability and ask for help. That's all you're doing here: asking for help with a health issue. You have my sympathy and support.

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mamagotcha September 13 2014, 05:58:09 UTC
Thanks, Tara. That's a great way to think about it. It's just hard to wrap my head around the idea that this is not going to get better and I need to ask for help. It's just going to take some time.

I'd love it if your sister had any info on supplements that have helped her!

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elainetyger September 13 2014, 03:15:50 UTC
5HTP in the morning, for months at a time, has helped me during times when I didn't have energy physically or mentally to enjoy getting out of bed. I've taken magnesium every night for years because it's the only guarantee of no constipation. Just started vitamin D, fish oil, and calcium because of my bone injury, but will continue taking them for prevention since I also recently went through menopause. Turmeric blends did sod-all for my inflammation; someone with a similar injury said I should have gotten plain turmeric capsules. The Chinese acupuncture doctor sold me some anti-inflammatory pills and some pain patches that were more expensive but also more effective.

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mamagotcha September 13 2014, 06:01:23 UTC
Thanks, Tyger. I started both the calcium and magnesium at menopause for backaches and hot flashes, and the vitamin D is supposed to help with absorption. Now I hear the malic acid is supposed to be more effective with the magnesium, too. The turmeric I'm using is the plain stuff, and I do think it's been helping (I've been taking it for a couple of weeks now).

I have a very hard time with needles, but I'll keep the Chinese medicine info in mind. Glad to see you are driving and doing better!

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ext_1628500 September 15 2014, 17:49:11 UTC
I am glad you have some answers...but it sucks that there is no "fix".

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mamagotcha September 18 2014, 00:39:04 UTC
Thanks. You wrapped up my feelings quite succinctly there!

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