Comments | misledyouth00: (без темы)

misledyouth00

(Untitled)

Sep 02, 2010 03:31

Lyme dr. is disappointed that I'm not responding to any treatment. YOU AND ME BOTH, LADY.
And just generally seems confused. Really, you're supposed to be way good with a disease that's fucking sneaky and hides in different parts of your body so you can't eradicate it or at least have a fuck hard time kicking its ass back into remission.

So her ( Read more... )

Comments 12

senorita_1029 September 3 2010, 17:59:09 UTC

I don't know if you've seen this, but there's an article that goes over secondary/adjunct treatments for Lyme ( ... )

senorita_1029 September 3 2010, 17:59:55 UTC

(I forgot there's a limit on comment length...)

It's hard to stay positive this long. And I think you've been doing a pretty good job of keeping face and being hopeful, but everyone has a breaking point. I get annoyed after a week of doctor's appointments, you've been doing that for months on end. It's exhausting.

And fucking HAH to the religious thing. Do I even want to know who came up with that gem?

misledyouth00 September 4 2010, 02:14:47 UTC

Wow, that's a lot of information! Thanks! I don't even know what to do with it all though!

My aunt is the only Catholic left in my family. And I love her and am the most like her, even more similar to her than my own mother, that part I can't get behind. I tried to tactfully be like um...no. But she pushed the issue and I didn't feel comfortable telling someone I care about, "Actually, I don't believe in a mythical man in the sky...and I kind of think poorly of others who do..."

senorita_1029 September 4 2010, 16:48:20 UTC

They're just secondary treatment methods that you could talk to the doctor about. I don't know how valid/effective any of them are, but if antibiotics aren't working, it might be something worth looking into.

Yeah, I think this is one of those things where you just smile and nod...

misledyouth00 September 4 2010, 21:08:06 UTC

My mom, dad, and even Mac were like yeah...you should look into antidepressents! Like really, ALL of you think that? ALL of you, who are able to go out, do any mundane thing you take for granted, and just in general not need painkillers to take the edge off to sleep? Really? You all think I'm being 'mopey' now?

Lyme and Back anonymous September 9 2010, 02:42:32 UTC

I can totally relate with your frustration - took me years to get diagnosed and then treatment (a long story). I just started a blog about Lyme and all these frustrations - www.lymeandback.blogspot.com

Email me if you ever want to talk to someone who can relate x

vanessagalore September 15 2010, 06:11:36 UTC

Hi, I live not far from you, I think. We have the highest rate of Lyme disease in the country. Found my way here from your post on lyme_disease. That comm is not very active. Message me if you want details where I am ( ... )

misledyouth00 September 17 2010, 21:19:33 UTC

Yes! Heat makes it hurt worse, I haven't been able to take showers in months because the heat just makes everything hurt so bad. I have to sit and take baths. I'm all about ice and load myself down with them.
I've never heard of sauna treatments before but saunas in general make me feel dizzy and like I'm gonna pass out.

Is TENS the little electroshock for arthritis? All I've got for pain is vicodin but when its really bad, I'll take two and it'll barely take the edge off. I don't want to take more than that because it can fuck up your liver but at the same time, 2 reeeeeeeeeally doesn't help much.

I'm vegan so my diet is mostly beans, veggies, fruits, and carbs. I used to be a size 3 before everything happened! And now I gained fucking 30 pounds from doing absolutely nothing different. What would you get surgery on, if you don't mind me asking? I never heard of Singleton, why would his diet help lyme? I could cut down on gluten but I don't think I could ever eat a living thing ever again.

vanessagalore September 17 2010, 21:35:24 UTC

Check that book out. Really good guide to supplements too. I saw that you were vegan which makes it hard. Sugar supposedly feeds the lyme bacteria and also increases the possibility of yeast infections. And starchy stuff turns into sugar when you eat it. I've been low-fat, hardly any red meat for years...and now I'm basically doing Atkins and I lost 15 pounds in less than a month ( ... )

misledyouth00 September 17 2010, 21:54:47 UTC

Really? I'm fighting the yeastbeast right now but I haven't really increased my sugar intake at all. I'm more of a starch lover ( ... )

vanessagalore September 15 2010, 06:12:19 UTC

(cont'd, because I do tend to yammer on ( ... )

misledyouth00 September 17 2010, 21:44:14 UTC

My situations not that bad, I'm just a whiner and livejournals my dumping grounds. I've thought of breaking stuff before...but we're saving every penny for medical bills so if I break anything, we'd just have to spend more money to replace it. But I reeeeeeally want to. My drs. seem to be taking this more seriously than my loved ones. None of them have said its in my head yet whereas my family and husband's family seems to kinda start insinuating it may be, with his being the worst.

Right!? Lyme IN GENERAL is depressed! And I don't think taking some stupid fucking anti-depressant will help with that because it won't help my situation.

I just want a doctor who says, "I have an answer for you...and I take your insurance."

TEAM LYME BRAIN! FOR LIFE! (because we gotta)