I don't like fibro groups or support groups
because I get so much more depressed after reading their comments, such as this one:
"so good to find this group... these past 2 years of my life have been completely destroyed by severe fibro pain... and I am PISSED! Now that i know what is going on, I am having a hard time accepting that i will have to deal with this the rest of my life... I'm a PhD student (on med leave, of course) and have big plans & dreams for a career that I adore. So I need Fibro-related groups that are all about FIGHTING and OVERCOMING!
I am a can-do person, had been a very active feminist & race-relations activist and I know how to advocate for others. But now that i am soooo frigg'in exhausted and in such crazy pain, i am finding it hard to advocate for myself.
I hate this, hate it, hate it, hate it and MISS my old life (which I adored) soooo much. I've been blessed to have supportive doctors in my corner (for the most part) but the more I read, the more appalled I am at the lack of research & understanding.
thank u for this group! FIGHT ON!!"
However, I do agree that it's hard for us to advocate for ourselves because we are so fucking exhausted.
So I am asking all my friends- those lucky SOB's who don't have fibro or rheumatoid arthritis- to help advocate for us! Fight for us! Fight for research to be done. Do you realize how unfair this is? Do you think it serves any purpose in hell for me and Lynn and Barbara to be in constant acute pain every day of our motherfucking lives?? And it's not the pain- it's what the pain excludes us from doing.
I realize that some of you guys on here never reply when I talk about my fibro stuff. I don't know if it's because you don't know what to say, or you think I'm just "whining" (Doug- you'll never live that down even though you're not on my list anymore), or you feel it drains you.
But believe me- I'm not a fucking whiner. I'm a fighter. I always have been. I always went to school when I didn't feel that great- I hardly complained about physical shit. I'm not a wimp. When I complain, there's a damn good reason. It's usually venting, but a lot of times I am looking for support. And I usually explicitly ask for it and a good portion of you guys pull through.
Thanks.
See? Posts like the one I found make me too angry. I don't want to be like that.
I can do so much more for society. You guys have no clue how influential and powerful and successful I could become if I didn't have this motherfucking disease. But most of all, I could be HAPPY. Truly HAPPY. I don't know or remember the last time I was happy. Truly happy. I know I said I was happy in the last picture post, but I mean- happy about where I'm at, being able to have a family, being able to live where I want to live, have the opportunity to date quality people!!
Okay- I have to stop writing about this because I'll get way too depressed.
"so good to find this group... these past 2 years of my life have been completely destroyed by severe fibro pain... and I am PISSED! Now that i know what is going on, I am having a hard time accepting that i will have to deal with this the rest of my life... I'm a PhD student (on med leave, of course) and have big plans & dreams for a career that I adore. So I need Fibro-related groups that are all about FIGHTING and OVERCOMING!
I am a can-do person, had been a very active feminist & race-relations activist and I know how to advocate for others. But now that i am soooo frigg'in exhausted and in such crazy pain, i am finding it hard to advocate for myself.
I hate this, hate it, hate it, hate it and MISS my old life (which I adored) soooo much. I've been blessed to have supportive doctors in my corner (for the most part) but the more I read, the more appalled I am at the lack of research & understanding.
thank u for this group! FIGHT ON!!"
However, I do agree that it's hard for us to advocate for ourselves because we are so fucking exhausted.
So I am asking all my friends- those lucky SOB's who don't have fibro or rheumatoid arthritis- to help advocate for us! Fight for us! Fight for research to be done. Do you realize how unfair this is? Do you think it serves any purpose in hell for me and Lynn and Barbara to be in constant acute pain every day of our motherfucking lives?? And it's not the pain- it's what the pain excludes us from doing.
I realize that some of you guys on here never reply when I talk about my fibro stuff. I don't know if it's because you don't know what to say, or you think I'm just "whining" (Doug- you'll never live that down even though you're not on my list anymore), or you feel it drains you.
But believe me- I'm not a fucking whiner. I'm a fighter. I always have been. I always went to school when I didn't feel that great- I hardly complained about physical shit. I'm not a wimp. When I complain, there's a damn good reason. It's usually venting, but a lot of times I am looking for support. And I usually explicitly ask for it and a good portion of you guys pull through.
Thanks.
See? Posts like the one I found make me too angry. I don't want to be like that.
I can do so much more for society. You guys have no clue how influential and powerful and successful I could become if I didn't have this motherfucking disease. But most of all, I could be HAPPY. Truly HAPPY. I don't know or remember the last time I was happy. Truly happy. I know I said I was happy in the last picture post, but I mean- happy about where I'm at, being able to have a family, being able to live where I want to live, have the opportunity to date quality people!!
Okay- I have to stop writing about this because I'll get way too depressed.