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May 17, 2005 21:17

Well, that was short lived. For a brief time, all the pain went away totally. And now it's back. And ramping up. I have new drugs, but so far nothing is working again. And I had burning in my ankle, which I keep telling myself is psychosomatic. It has to be. I don't know how I'll face life if this insideous disease is all over my body. I ( Read more... )

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Naming Names bethr May 18 2005, 03:25:07 UTC
except for something that someone knows about and shared and I don't want to discuss here. I just...don't know.

Don't not talk about it on the account of protecting someone else's privacy. Talk about it in a way that makes sense only to you, if you have to.

And anyway, my standard of privacy is, for instance, pretty low.

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vokzal May 18 2005, 04:54:26 UTC
Wait, what disease?

And can you hyperfocus on something to help ignore the pain?

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moontoad May 18 2005, 10:24:23 UTC
hyperfocus? Bahahahaha. Ahem. Read down a few posts. The pain is CONSTANT. I can't hyperfocus all day. http://www.rsds.org is probably the easiest source. It seems that even if I don't destroy my nerves with the blocks, I may be limping towards a sympathectomy. Intentionally cutting the nerves and doing something so that they can't grow back, or something like that. I haven't had to have that thought in my head for a while, so the details are vague ( ... )

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