(Untitled)

[cerridwyno9]

hi my real name is dee but you can call me Cerridwyn here. I was recently diagnosed with ET The shaking is mostly in my hands and on a good day it's slight on a bad day it spreads to my right leg. and I can't type

Comments

[luminairex]

I'm going on my 4th year with mine. It's mostly controlled with medication and usually limited to my right arm. On some days, my right leg starts going, and on the worse ones, my face, neck and eyelids.

The medication does wonderful things, but I hate how it makes me feel emotionally. A life without feeling adrenaline is quite boring :-/

[sue_n_julia]

Try keeping an activity diary and a food diary. Make sure you record how much you sleep and how often you wake during the night (many of us with neuromovement disorders have sleep issues too). Check it against your symptoms and see if you have anything that aggravates it.

For me (with cervical dystonia), raising my arms away from my body, lack of sleep, travelling by plane or car, and sitting upright too long can aggravate it. Strangely, resting my arms on top of my head eases it (tricks the dystonia into relaxing, not sure how).

S

[cerridwyno9]

Cool thanks alot