I haven't really been updating because the livejournal app on my phone hasn't been working very well and despite having a REALLY nice laptop (oh god, it's so nice) it has somehow been demoted from an awesome batch photo editor, to primarily a Sesame Street streaming device. Evan has a really nice iPad that he received as a christmas bonus from his
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Wishing you lots of luck on the health front. <3
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Sesame St is the bomb. It could well get worse over the next year or two. Just sayin'... ;)
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Since FB tells me you're back in OHSU, I am taking that as a good sign that your CF doc took your concerns seriously. But I'm so sorry that you're feeling like crap and your numbers are down. Hope the time in hosp does you good, sweetie. Hang in there.
Love love love and lots of hugs.
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