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Comments 21

gallian March 2 2016, 11:29:34 UTC
Thank you for this. Boston vigil is Sunday afternoon. Working on what I want to say now. Will post.

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nightengalesknd March 3 2016, 00:37:32 UTC
I agonized over the wording for weeks. I still don't quite like how I ended it, but what I wanted to say had too many double negatives. (Something along the lines of "They just didn't notice they weren't teaching us not to")

One thing we talked about last night was getting the community together more often for good things. It was like a family funeral where you hug everyone and say, good to see you, but not under these circumstances.

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jimmi_obadger March 2 2016, 14:08:05 UTC
As a nurse working mostly with older adults who are learning to live with significant disabilities, I am deeply grateful for your writing.

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nightengalesknd March 3 2016, 01:13:38 UTC
Thank you. The relationship between medicine and disability continues to deserve nuanced thought.

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jedibl March 2 2016, 16:19:03 UTC
I really think you should submit this for publication somewhere. I just am not familiar enough with the options to have an actual suggestion as to where. But more eyes need to see it, and not just the eyes that are already aware of Disability Rights Activism.

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nightengalesknd March 3 2016, 00:40:22 UTC
Thank you.

I've thought about that but I'm not even sure where. Maybe the Journal of Disability and Health? I've met the editor.

What I really want to do is send a copy back to my medical school, that would be "shocked if someone said they had." I think their exact words at the time were "you're being too sensitive." That's when I started writing things down. (Not all these things happened in med school, but all but one happened during my training and that one happened to another student at a different school.)

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androgenie March 7 2016, 05:47:08 UTC
Disability Studies might be a good fit & they take poetry

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londonbard March 2 2016, 20:18:37 UTC
I probably reached your journal by clicking on the wrong button, but would you object to my adding you as a friend?

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nightengalesknd March 3 2016, 00:29:24 UTC
I suspect you got here through friendly_crips, no?

Welcome!

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londonbard March 3 2016, 01:05:48 UTC
I clicked Sammason's friends list instead of mine. (I messaged you to explain) but you're right, I am a member.
I've also seen your comments there and really like your writing.

I messaged you to tell you more, have you seen it?

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nightengalesknd March 3 2016, 01:16:10 UTC
I hadn't seen your message before. I have now.

I'm a multiply disabled pediatrician who cares for disabled children.
My LJ is frequently, although not always, about the contrast between how illness and disability are presented in professional settings and how they are experienced by actual people with actual disabilities. Sometimes I talk about other aspects of health care or other aspects of disability. Sometimes I talk about cooking or folk dance or something completely unrelated! And a lot of entries are locked.

I agree we should add each other

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q10 March 2 2016, 20:19:53 UTC
I, I don't have a lot to say, but this is excellent and powerful. I mean, the situation it describes is distinctly non-excellent, but...

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nightengalesknd March 3 2016, 01:06:46 UTC
Words are all I can offer the situation. Which will hopefully change for the better.

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