Meaningful Inclusion

[nightengalesknd]

There are other things I want to write, need to write, have even started to write, but things have sort of come to a head. I may later discuss here, or under separate cover, the level of Not OK that happened tonight at an event ostensibly about adult autism issues and that did actually have some autistics in the room. But this has been a long

Comments

[sammason]

Thank you for making this list. Thank you for asking us for comments and suggestions. Before saying anything else, I'll request that you post a version of your list and thoughts to friendly_crips where I'm sure people will have suggestions to make. But of course, you don't have to post a 'work in progress' there unless you want to

[nightengalesknd]

I've had mixed thoughts about posting something specific to one disability to a pan-disabilty community - things can quickly seem to be All Autism All The Time when that happens. But yeah, I may cross-post a version over there

[sammason]

I'm glad you did go ahead with a post to the comm. What you're doing is important.

As it happens, I don't notice autistic people trying to take over or anything like that. Quite the opposite.

[kittenmommy]

I share your concern about people being 'self narrating zoo exhibits' but it's not always negative. I've offered to take a role like that myself, about the disability I have, which is often misunderstood.

Definitely. I feel the same way about my CP... but if I were more affected, I might not be so enthusiastic about being a "teachable moment", because I'd probably be getting comments about my condition all the damn time. KWIM?

[gaudior]

Autistic presenters are paid, if neurotypical presenters are paid

This isn't standard? Oh my gods. Feh!

[nightengalesknd]

From what I've been told, no.

Sometimes it is because the autistic presenters are panalists, who aren't paid, while speakers are. That may be a standard thing, not to pay panalists, but if you only invite autistics to be panalists, not speakers. . .

I've never been paid for any presenation I've given, anywhere, ever, except that I have had to give presentations like Grand Rounds as part of jobs I've had and gotten paid for my job as a whole of which presentations is a tiny tiny piece, and I do generally disability advocacy, not self-narrating zoo exhibit, so I can't speak from personal experience. But it came up at Autreat in a panel discussion about some of the the pros and cons of accepting a request to be a speaker/panalist at neurotypically run events.

Especially when, consider, the neurotypical professional speakers are statistically more likely to have, you know, jobs.

[plasticsturgeon]

Ahahahahahahahahahaha

[plasticsturgeon]

Sorry, I just realized that might have sounded mocking. It's just pure bitterness.

[plasticsturgeon]

Not very with it at the moment, but the list looks great to me so far! Thanks for making it!

[nightengalesknd]

Right now it seems I have a choice between

A) Stop going to places where autism is the topic
B) Try to fix things, even a little

So yeah, I'm choosing B

[plasticsturgeon]

Fighting off the urge to call you "inspirational." :P

[nightengalesknd]

That's fine. So long as the inspiration is in my remarkable restraint as I refrain from hitting anyone.

[kittenmommy]

Autistic presenters are paid, if neurotypical presenters are paid

Wow. Is that seriously a thing, that they don't pay autistic presenters? I'm just flabbergasted! D: