Things (fingers crossed) looking up

[philia_fan]

 Here I am in the hospital, waiting (and waiting) for treatment.  But good news!  The trial protocol has changed, because apparently everyone on it feels like a zombie, and they are now allowed to lower my dose -- yay!  Hoping this will alleviate some of the deadly fatigue and other, lesser annoyances.  Also the doc gave me a prescription for

Comments

[jade_sabre_301]

yay lower doses! YAY PHYSICAL THERAPY! :-)

[philia_fan]

Yeah, it made me feel like they weren't thinking I'm a lost cause.

[tiegirl]

Oh, that's awesome! YAY!!! :D

[philia_fan]

Yay! Now I have to overcome my fear of phone calls and call the PT place...

[agh_4]

Oh GOOD! I hope it makes things better.

But the wait, eurgh. It's a not a hotel, it's a pharmacy...

[philia_fan]

The wait times are mysterious. This time it was because they couldn't find the clause in the new contract that said they could lower my dose, and eventually they had to call the person in charge of the trial. Geez. The woman next to me at infusion had also been there for six hours.

[ilysia_039]

Good luck with the physical therapy! And here's hoping that the fatigue goes away soon!

[philia_fan]

Thanks! So far I'm still napping like crazy but it's got to be a slow shift I think.

[emmaco]

Hi Philia! Sorry to hear about the waiting but worth it for lower doses. And fingers crossed the PT is helpful.

I am trying to slowly regain my blog reading habit in the hope it leads to blog writing again...

[philia_fan]

Yes! Would love to hear what's up with you and what you're reading!