Rough Events
June 16th, 11am
Well, the doctor has just told us that he expects it will be longer than we were told yesterday... which is actually worse news I think. As much as we don't want to let go, it feels selfish to want to keep him around longer in this state. He is not well. He is uncomfortable and still in pain. They are trying to keep him as comfortable as possible, but they can only do so much.
He has a clot in his lungs and bleeding in his brain. To treat either one is to harm the other. So treating him would most likely either suffocate him or send him off with excruciating headaches. Thus, we make him comfortable as possible, and let him take his course, which is less pain, but more drawn out. I don't know what's worse.
June 16th, 11pm
I'm staying overnight at the hospital, and my brother will do it tomorrow night as we are taking turns.
Things have seemed to calm down since yesterday, we spoke to the medical director of the palliative care unit this morning, he came to clear up any more questions/confusion still present about Dad's condition. First thing he did inform us was that it would be impossible to predict how fast this whole process may take. The 48 hour notion seems to be irrelevent and impossible to claim at the moment. We have no idea how the clot, or the hemorrhaging are going to progress so there is no way to predict any type of timetable. All we can do at this time is make him as comfortable as possible for as long as possible.
He was much more fluid/aware today which was a pleasant surprise. He is still consistently on morphine so he tends to forget things but he was able to respond with more clarity and speak in more complete sentences than he has since i have been here which was very nice. Amir and i got to spend a lighthearted hour or so with him while mom was at dinner joking around, he even broke out in laughter a couple times which was SO nice to see. I especially was very happy to have had some quality time with him where we could actually carry a conversation. His vitals are good at the moment and he seemed to be doing well, he is not in pain, he is just feeling some discomfort from being bedridden for so long which is to be expected.
So all in all we are pleased, . However, we also realize that today may be an isolated incident. We just have to take it one day at a time and see how he does. We have been reading all of your lovely messages to him, and he definitely hears them and we know that he appreciates all of your thoughts and your prayers.
June 17th, 12pm
I'm beat. The night did not go well for him. His back is in persistent pain, mostly b/c he's been bed-ridden for so long I imagine, and due to his condition, he can't get up. Every couple of hours I woke up to him whimpering, so I settled him into a new position and rubbed his back some more.
I got angry at the nursing staff last night. At about 4am, two of them came in to "roll him over," despite my telling them that I had been changing his position regularly. What's worse is that they were all of 5' nothin, and were thus unable to effectively move him. So it was a painful process until I insisted that I do it.
The rest of my family showed up around 10:30, letting me go back home to take a nap, which is what I'm about to do. I hope his day goes as well as yesterday, and certainly better than he was through the night.
Well, the doctor has just told us that he expects it will be longer than we were told yesterday... which is actually worse news I think. As much as we don't want to let go, it feels selfish to want to keep him around longer in this state. He is not well. He is uncomfortable and still in pain. They are trying to keep him as comfortable as possible, but they can only do so much.
He has a clot in his lungs and bleeding in his brain. To treat either one is to harm the other. So treating him would most likely either suffocate him or send him off with excruciating headaches. Thus, we make him comfortable as possible, and let him take his course, which is less pain, but more drawn out. I don't know what's worse.
June 16th, 11pm
I'm staying overnight at the hospital, and my brother will do it tomorrow night as we are taking turns.
Things have seemed to calm down since yesterday, we spoke to the medical director of the palliative care unit this morning, he came to clear up any more questions/confusion still present about Dad's condition. First thing he did inform us was that it would be impossible to predict how fast this whole process may take. The 48 hour notion seems to be irrelevent and impossible to claim at the moment. We have no idea how the clot, or the hemorrhaging are going to progress so there is no way to predict any type of timetable. All we can do at this time is make him as comfortable as possible for as long as possible.
He was much more fluid/aware today which was a pleasant surprise. He is still consistently on morphine so he tends to forget things but he was able to respond with more clarity and speak in more complete sentences than he has since i have been here which was very nice. Amir and i got to spend a lighthearted hour or so with him while mom was at dinner joking around, he even broke out in laughter a couple times which was SO nice to see. I especially was very happy to have had some quality time with him where we could actually carry a conversation. His vitals are good at the moment and he seemed to be doing well, he is not in pain, he is just feeling some discomfort from being bedridden for so long which is to be expected.
So all in all we are pleased, . However, we also realize that today may be an isolated incident. We just have to take it one day at a time and see how he does. We have been reading all of your lovely messages to him, and he definitely hears them and we know that he appreciates all of your thoughts and your prayers.
June 17th, 12pm
I'm beat. The night did not go well for him. His back is in persistent pain, mostly b/c he's been bed-ridden for so long I imagine, and due to his condition, he can't get up. Every couple of hours I woke up to him whimpering, so I settled him into a new position and rubbed his back some more.
I got angry at the nursing staff last night. At about 4am, two of them came in to "roll him over," despite my telling them that I had been changing his position regularly. What's worse is that they were all of 5' nothin, and were thus unable to effectively move him. So it was a painful process until I insisted that I do it.
The rest of my family showed up around 10:30, letting me go back home to take a nap, which is what I'm about to do. I hope his day goes as well as yesterday, and certainly better than he was through the night.