what's going on

Sep 26, 2016 13:18

(sorry for another update in the form of a copy/pasted email to my best friend but she's been with me through this whole horrible summer and sometimes I can only find the words when I'm speaking to her)

*flaps hand in rough imitation of cheerful wave*
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reallyginnyf September 26 2016, 21:02:38 UTC
You're very sweet to say so. I think *you're* amazing for the way you're caring for your parents along with all of your other responsibilities. I don't know how you do it all with such grace. I'll definitely look for you on Facebook, I'm Ginny Dell Frey over there but not terribly active at the moment.

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capalxii September 27 2016, 05:02:59 UTC
i know what you mean about visible disabilities vs invisible, a lot of times people forget (or never realize) invisible disabilities or less-visible disabilities are a thing, and they just get scornful and judgey. it sucks that people, for lack of better word, suck like that. i hope you all get the support needed, both from the school and maybe support groups that might be around the area or online, if you'd be up for it (though yeah sometimes one isn't up for it).

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reallyginnyf September 29 2016, 02:55:31 UTC
We received the official "refusal to evaluate" from the school district today so I have a fight on my hands but I am organized and intelligent and tenacious and I used to work at an independent living center so I can shove the Rehabilitation Act of 1973 right down their throats. I think the districts count on parents either not knowing their rights or not following through but that won't be happening. And thanks, I've looked at support groups but I'm not good at face-to-face stuff and haven't found just the right online group yet.

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capalxii September 30 2016, 01:53:25 UTC
that sucks but it's good to hear you've got the skills and ability to fight it, good luck fighting it & i hope it all ends well

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grigorisgirl September 27 2016, 15:27:11 UTC
Hi, eldest son went to a special needs school as he is dyslexic and there were a lot of boys who were dyspraxic there too so I know a bit about what you are dealing with. It's a tough row to hoe but you both sound like you are the sort of people who will be there for each other. He's going through a difficult stage at his age anyway so it's not all his "condition".
One of the reasons I avoid Facebook and the like is to avoid the "happy families" posts.
Living with people with MH concerns I do so agree about "visible disabilities"
Thinking of you.

Still things could be worse, Donald Trump could get elected.......

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reallyginnyf September 29 2016, 03:01:32 UTC
Thanks so much, it's always good to hear from you! And you're right, my husband keeps reminding me that 14 is a tough age even when you're not dealing with dyspraxia and that overall Zack is doing well. I know he'll be okay and yes, a lot of the social anxiety and awkwardness and forgetfulness is just normal adolescent behavior. We're making sure he goes to mental health therapy every week and we're ready to fight for his right to physical therapy and occupational therapy through the schools and more than willing to pay privately if we have to.

Oh god, I literally shudder when I think that President Trump could be a possibility. Let's hope the voting public is not as idiotic as the polls make them seem.

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reallyginnyf September 29 2016, 03:04:24 UTC
Thank you, sweetheart. I know we'll be okay, it's just good to vent about it sometimes, especially in a more private online forum. I don't have the energy to talk about it most of the time so this helps.

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captivebird October 3 2016, 10:23:29 UTC
Sending virtual hugs of solidarity as one mother to another. I know you three are a tight, loving, communicative family unit and will look after each other whatever life throws your way. Horribly unsettling times we are living in right now for so many reasons - on both sides of the Atlantic. :-/

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