Friends in the UK, please sign this petition...

[renniek]

There's been a lot of news lately on a new treatment for MS that seems to help even those poor sods with the primary progressive form of the disease (which doesn't respond to existing drugs to reduce the chance of relapses). It's a non-drug treatment to improve venous blood flow, based on work by an Italian doctor who found out that people with MS

Comments

[stsquad]

Duly signed.

Is the call for the treatment to be debated in Parliament because NICE take so long to get around to it? Obviously I'm all for treatments that make lives better but I'm supportive of NICE's evidence based approach over which MPs sound off on a given issue.

[renniek]

Yeah, I think many patients view it as particularly urgent because although there are a range of treatments available for those (like me) with relapsing-remitting MS there isn't anything effective for the progressive form of the disease.
It's at least patrly about raising awareness. The treatment has only been through phase 1 clinical trials so far, but the results look very promising and it'd be good to get onto phase 2 and phase 3 trials quickly - but as it's not a drug, there isn't the typical investment from pharmaceutical companies so the only way this will happen is by urging government, charities and academics to step in.

[renniek]

Yeah, it's worded badly. Will try letter to MP.

[si_lloyd]

signed!

[big_rob_c]

Signed