General Life Update
Let see, I know that I have been quite and not talking to anyone very much since I left LEF but I'm feeling much better now so here is a short update on what has beening happening in my life. As most of you know that in Sept the kids and I moved to MD to be with Ray. It was a little harder to move than I thought, even though the house had so much work to be done on it and it felt like it was falling down around my head it was the first house Ray and I picked out together and bought and selling it was a bit harder than anything else. Other than that I so "Love" the Salisbury area. It has a small town feeling with a few of a big city things. It is a college town and I just adore all the "kids" that live in my building, *smiling as I think of them* I don't care about their noise and they don't care about me yelling at the kids. LOL we all get along great. I have even made a very good friend, she is married with 3 kids (5 months, 3yrs & 4yrs) now all of our kids don't get along all the time due to mine being older and in that phase "don't touch my stuff". So we made a box of toys just for the girls to play with so they touch all they want too and Britt & Justin can't complain.
Now for the medical update on me...Here is the part of my life now that is driving me a bit crazy and I'm not really sure how to handle all of it. My Doctors in VA (3 hours away) said that they would see me since I was on a 3 month vist time for med check and refills. So One week before my first appt with them I get a letter that they we no longer see me due to me living so far away. Damm*it*to*hell! So I had to find a new Neuro doctor to see as well as a densist and family doctor. *shudders* I hate finding new doctors almost as bad as finding a new hairdresser. LOL Got lucky the first try with the hairdresser and family doctor but densist I found will not see the kids so gotta look for a new one in that area. So any back to topic about the Neuro. I had one recommended to me so I figured what the hell and made appt to see him. After filling out all the "new pat." papers I go into see him and I explain all that has happened over the past two years. Show him all the info I have from the VA doc. (not complete medical paperwork) He seemed to listen and look at everything but now I'm not sure. He told me that he didn't think I have RLS. Shit!! Shit!! Do you know how bad it is to have something wrong with you and not know what it is? Well I can tell you that it SUCKS big time! So he wanted me to hae a sleep study done. It was on 12-27-04. Well part of the questions I had to fill out were like how many hours of sleep did you get the night before? and the night before that? night before that? (they want the the hours for each night for the three nights before the 27th) So I'm LMAO to myself thinking, Christmas Eve and night? Right sleep? What was that? Parents should never have to answer those type of questions. Anyway the sleep study was two fold meaning half the night I slept without a SEC(sp?) Pack and half with one. This was to see if I had sleep apenea or not. Well like I told the nurse yes I have it and I know it always have. But Ray said that I didn't have it until I started beating him up at night. heheh so anyway I did the sleep study and hated it. Had to sleep in shorts and t-shirt on a hard bed and hotel like covers. So glad I had my own blanket and pillows. *nods head* very glad. Saw the doctor on the Neruo on 1-19 and he told me that my sleep apenea is very severe not his worst case but up there. So it looks like I'm getting a SEC pack on the 1-20th and after sleeping with it for a month I go back to see him. He did tell me this vist that he hasn't rules out RLS but he wants to be able to say this is what you have and why. Seems like I have a doctor who wants to be able to tell ppl why they have the thing that is wrong. But then Like I said that not always can you do that and he admitted that was true but just bare with him for a while and let him check a few things out and see how things go. So I can't decide really what to do. At this point Ray and I decided to sleep for a month on the SEC pack and see how it works and I how I feel and it the shakes don't go away and the doc. is not sure or we don't like his next choice of test or whatever then I'm off to Balitimore to see if I can find a "true" specialist in the field of RLS.
I have someone tell me that I did know what it was like to be different from the rest of the world and have ppl stare and whisper about you. Well I'm setting this straight right now. I DO know how it feels, just sure not if you do. Every time I go anywhere and I start shaking in my head or arm or legs for that matter, pple stare, whisper, point and even call 911. So yes it is hard to be different in the world of ours but for those of us that have things wrong and make us different, we have to learn to live with all of that and the disorder or whatever at the same time. I would much perfer a perso to ask me if they can help me or if I need anything or what is wrong than to think all the things they do about me but they don't and that is way of the world. If you chose to be different and over the top about what is different about you from other then you have to be ready to take all the looks and whispers that come with it. You, anyone or I have to comfortable with ourselves before others be comfortable with us. Right? Uhm...think about it.
So this leads me up to my visit with Sanity and I will write about it in other entery. So much to share it's a wonder of where do I start. So let me get my thoughts in order and I will share with all my friends.
Hugs to all and no I'm no spelling checking so just overlook anything wrong. LOL