I started to write a post but it was really morose. I couldn't bring myself to post it ( Read more... )

So, as I'm sure you can imagine, this news of the last few days has been a massive gut punch to both of us. We never heard back from S's PCP yesterday (he's a busy man, he can't always get back to us right away), which means that there will likely be no movement on anything until Monday ( Read more... )

Rather than reply to everyone individually, I'll just make this post here to thank all of you for you support through this very difficult time.

And We will be acting on the offers and suggestions made.

Thank you all again, I really don't know how I'd get through any of this without you.

The last couple of days have been too much, and yesterday, we were dealt a very serious blow.

S was informed that she will not be considered for the liver transplant program, as she tested positive (in the doctor's words, very positive) for recent alcohol use. Automatically disqualified ( Read more... )

Okay, so a week ago, I promised a game design update soon. Well, that was two days before Thanksgiving, and I was clearly misunderestimating the amount of time I was really going to have to write over the holiday weekend. Plus there was the whole Puzzle That Ate The Internets thing, but I finished that (and converted my Windows XP machine to a ( Read more... )

Just a quick FYI post -- MM and I spent the afternoon discussing the supers game, and the intricacies of mechanics, which was good, as it helped focus some of my thoughts there. So, over the next several days, I'll be making some details about mechanics and game theory, and how that all ties together, so the mathy types will probably be interested ( Read more... )

I've been working on the first post. Not quite finalized. Later today or first thing tomorrow.

Okay, so I'm starting work on designing a new gaming world (actually a couple of them, counting a supers project mircaleman and I are doing together. I plan on journaling out several of my essays, world, place and mechanic descriptions, and generally journaling my thought process into creating a couple of different worlds, probably all based on the d20 ( Read more... )

But to give a brief update: S is doing much better. Her fluids and weight are way down. Although her weight is down far enough that we're a little nervous about that now. Other than that, she's been in well health, although she has good days, with more energy, and less pain/discomfort, and bad days, with less energy and more pain. Today's been ( Read more... )

Okay, so we got some good news today. The financial aid worker called and told us she has received a fax from the state saying that S will be getting presumptive coverage starting for September. Full coverage is still pending, which would cover our August expenses as well ( Read more... )