Comments | seasonalkat: Heavy hearted update

seasonalkat

Heavy hearted update

Mar 06, 2009 10:59

We had our appointment with the neurologist on Wednesday and when I was filling out the forms listing all the symptoms, it suddenly clicked that YES, he does have some disorder and we're doing the right thing by being here. Once we got in the exam room (after waiting an HOUR in the non-child-friendly waiting room), I started getting anxious. E was ( Read more... )

Comments 10

heavy heart anonymous March 7 2009, 13:48:31 UTC

You already know that I'm totally there with you. I understand everything you're going through and will continue to feel for quite some time. It's easy to say it will get easier, but hard to believe. A label can suck, but the help that can come with it is invaluable. E will thank you forever for fighting so hard to make life workable for him.

Mel

Re: heavy heart anonymous March 7 2009, 14:22:55 UTC

I'm so sorry that you are going through this but I can't thank you enough for posting that link. Claire has been diagnosed with many of the challenges listed, all as disparate pieces of the elephant, we will talk to our doctors this week and see if they feel that this might explain the whole ( ... )

Oh honey anonymous March 7 2009, 16:41:39 UTC

I can't imagine how hard this is for you now. Having a diagnosis is a good thing if it means that E can get the assistance he needs and if his behavior can be seen in the context of his having TS and not his being a bad kid. But who wants to hear that their child has a disorder? Huge, huge hugs to you.

Laura

anonymous March 7 2009, 19:18:48 UTC

Oh honey - I am so, so, so sorry. :(

I wish I had something uplifting to say but I don't. I know your heart must be breaking and you must be really being hard on yourself. And even though you know it's not your "fault" I'm sure it doesn't feel that way.

*sigh* I am so sad for you. Sad for E, yes but more so for you because I know the power of the "mother guilt" and the heartbreak of something being wrong with your baby.

Hang in there and know I'm here if you want to talk. Big hugs to you.

smokkee911 March 8 2009, 21:52:57 UTC

Oh wow!! I mean, yes, it's good that you now have a diagnosis, but you have a lot of work ahead of you.

You are a strong person who will no doubt educate yourself as much as you possibly can about it. E is in good hands.

Just take everything day by day, little by little, be courageous for yourself and for E.

*HUGS*

:-)