Comments | serenity151979: The next stage?

serenity151979

The next stage?

Feb 27, 2010 14:51

Following on from my previous post about the stages of grief, I think I'm in depression right about now. I'm going to bitch a little here, so bear with me.

( And I thought it was going so well )

eds

Comments 35

maribella008 February 27 2010, 15:01:08 UTC

Dearestest -

What can we do? How can we help?

serenity151979 February 27 2010, 15:04:08 UTC

Oh, believe me, sweet. You ARE helping. Probably more than I can ever express. If I didn't have this little online world to escape into I would likely go proper crazy, lol. I think getting it all out in my journal is a big help as well, it helps me to deal with it and move on rather than store it all up. *hugs*

maribella008 February 27 2010, 15:08:28 UTC

"I think getting it all out in my journal is a big help as well, it helps me to deal with it and move on rather than store it all up."

IAWTC.

P.S. Do check for cheer-you-up emails (I was so addled last night I forgot to add something).
<333333333333333

serenity151979 February 27 2010, 15:20:00 UTC

<3 <3 <3

bflyw February 27 2010, 16:16:04 UTC

hi babe!
*hugs*
I know...... it's just..... I don't know what to say, I can just hug you!

Wish I could just fix everything for you! Wish I could promise you everything will be just fine! Just remember that you are strong, and that not every day will be as dark as these dark days! And I do believe that in time, you will have less and less of these dark days, because I know you have a positive spirit in you that will beat that. But it takes time! And it's a lot of hard work, but you are just that good! And you have a good man by your side to help you!

And don't let anyone tell you that you aren't allowed to feel crappy when that's how you feel! Trying to 'hide' or stuff those feelings down doesn't make you get rid of them. You'll have to work though them!

Does any of your medical help involve any therapy (as in psychologist?). I think you probably could use professional help dealing with coming to terms with having a body that constantly works against you! anti-depressants only do so much.

Love ya!

serenity151979 February 27 2010, 16:56:03 UTC

*Hugs back* Thanks sweetie. It means so much just to know that I have such great friends.

The residential pain management course in England that I really want to go on deals with the psychological side of coping with pain and a long term condition as well as just medicating it, that's one of the reasons why I'm so interested in going. I have so many hoops to jump through first, I have to wait and go to the local pain clinic first, then I have to persuade them to sign me off as not being able to help me and as needing more specialised help, then I need to convince the NHS to provide the funding to actually GET me to Bath to go do this course.

bflyw February 27 2010, 17:48:00 UTC

Good luck with that!

It's so frustrating having to go through all those steps that has to be taken just to cross them off as 'been there, done that, didn't help!'

EDS anonymous February 27 2010, 21:25:01 UTC

EDS is like that. I have it too. I find that just taking one day at a time helps. And braces for as many joints as are bothering you ready for which ever joint is the trouble maker of the day. Keep on blogging, but get outside in the sunshine or look into supplements of Vitamin D, both will help the depression. Really!

Re: EDS serenity151979 February 27 2010, 21:29:59 UTC

Thanks! I'm hoping that the depression bit is just coming from the overwhelmingness (OK, so I think I just made that word up) of it all, and the fact that since things have started to go wrong they've just been snowballing. Looking back I can trace issues that I've had all my life due to EDS, but I can also see how I started to decline about 3 years ago but how rapid that decline became in the past year and even in the past 6 months.

fred_bear February 27 2010, 21:55:59 UTC

I know we haven't really kept up, but I have so many, many good and healing vibes which I am sending your way.

Thank you for sharing your journey with us and helping us understand.

serenity151979 February 27 2010, 22:00:52 UTC

It's so lovely to hear from you! *hugs* I was just thinking about you the other day, actually! (not in a weird way or anything, lol)

Thank you for reading. I debated for a while whether to make public postings about my feelings, but then I figured there's people out there who have never heard of EDS and would maybe like to know more (I know that this time last year I certainly hadn't heard of it) or it might just trigger a recognition in someone going through an unknown condition themselves, and also to fellow EDS sufferers who may be feeling something similar themselves. If I can help, then it's worth it.

tanisafan February 28 2010, 00:18:04 UTC

Oh, sweetheart. So sorry to hear that your body's been giving you such a rough time. I definitely think the anti-depressants might be causing the randomly falling asleep, though, right?

In the mean time, even just opening a window to get fresh air might help, if you're reluctant to go outside and risk something acting up? And my mom, who has chronic fatigue syndrome, was prescribed a sun lamp to get her Vitamin D levels up, which works wonders and was covered her insurance? Might be worth looking into?

Sending lots of love your way <3, I'm always available for emailing, okay? *smish*

serenity151979 February 28 2010, 16:24:07 UTC

Thanks hun *smishes back* I've been on those tablets for a while, but it might be a combination of all the meds I'm on (I take like 24 pills every day)

I'm seeing my doctor on Monday so I'll have a word with him about it. =)