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thefigtree March 11 2014, 20:00:50 UTC
Man, that sucks so hard. :( I'm so sorry to hear this bad news. I hope that you can hang in there and that the symptoms become more manageable. I'm sending hopeful thoughts your way. ♥

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sleeper6 March 11 2014, 21:47:12 UTC
Thank you for your kind words. :)

How are you, by the way? Hope everything is well in your personal and professional lives.

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thefigtree March 12 2014, 15:17:43 UTC
*hugs*

I'm doing okay, thanks for asking. Grad school is intense but good, and intern teaching is occasionally rewarding. :)

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kccalgal March 13 2014, 18:56:14 UTC
The diagnosis certainly sucks, but at least you have one and it isn't terminal. Living with pain isn't easy especially when people (especially coworkers) around you don't understand that it IS real and think poorly of you. This diagnosis at least provides you with some validation to everything you have been going through.

Hopefully you can find a doctor that will be a better match with you. I'm sure there is at least one MS research center in Texas hopefully in SA where you can learn more and find a doctor that meets your needs better. I hope you respond to medication and that side effects will be minimal. I appreciate the update. I've been wondering how you were doing.

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sleeper6 March 14 2014, 01:38:54 UTC
Yes, it's definitely a relief to know why I've been feeling like I do. I just wish I didn't have anything, you know? But I'll learn to live my life as best as I can.

The medication is only okay so far; I'm thinking my body needs to adjust to it before I really feel its positive effects (hopefully!).

I wasn't sure how much, if any, I should share. Don't want pity but I do want to explain why I've been absent. It's definitely not because I got tired of LuRe (never!) or you all (never! never!) but because of this thing. I do feel a lot more tired and the dizziness gets intense sometimes but I'm hoping I could learn to live with this.

Thanks for your support.

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petuniagirl March 13 2014, 21:05:21 UTC
I'm so sorry to hear about the diagnosis. I have a friend who was diagnosed with that about ten years ago--the good news is that the meds really helped and she's had very episodes since then. I hope the same will hold true for you.

Sounds like you have a good plan in getting a new doctor. Bedside manner/personality is important. It's hard enough dealing with disease without having a strained relationship with your doctor.

Sending positive thoughts your way....

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sleeper6 March 14 2014, 01:41:36 UTC
Thanks for sharing that. The meds so far are only okay; I'm thinking my body has to get used to them before I feel their effects (and less pain and stiffness); I'm hoping, anyway.

Yeah, I don't like this doctor. I've seen 2 others (my surgeon) and another one (unofficially--he's the uncle of a friend of mine) and they both have advised me to keep up with the meds and start the therapy and seek other medical help too. So yeah, I will do that very soon.

Thanks!

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hilja83 March 30 2014, 20:20:37 UTC
Wow that's really though.

Sending you lots of hugs and support.

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