Central sleep apnea in a healthy toddler - my grandchild, Emmy.

Apr 28, 2016 16:57

My grandchild, Emmy, had a sleep study done this month on the 13th. We got the results of that study yesterday, and she has central sleep apnea. It's a rare form of apnea that means her brain stops sending the signal for her to breathe as she sleeps. We've been referred to a pediatric pulmonologist and a neurologist for testing, and she might also ( Read more... )

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Comments 21

lyrstzha April 29 2016, 05:56:25 UTC
Gah! I have no info to offer, but I wish you and Emmy health and comfort.

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spikesjojo April 30 2016, 07:57:28 UTC
Thank you - from both of us. I'll be in the neck brace for at least another week. But that's the easy part.

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scripsi April 29 2016, 14:32:37 UTC
Oh, poor baby! I hope she will get good help! <3

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spikesjojo April 30 2016, 07:58:13 UTC
Well,she will be seeing a raft of specialists - the first thing is to find out if there is an underlying cause to treat.

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scripsi May 2 2016, 19:03:52 UTC
I hope they will!

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double_dutchess April 29 2016, 22:53:34 UTC
My well-wishes to both you and little Emmy.

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spikesjojo April 30 2016, 07:58:29 UTC
Thank you, I really appreciate!

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slaymesoftly April 29 2016, 23:22:20 UTC
How terrifying for all of you. I know nothing about it in children, but am hoping they will find something to do for her.

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spikesjojo April 30 2016, 07:59:10 UTC
Next step - neurologist, pulmonologist and cardiologist. I'll keep you posted!

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lifefailsme May 16 2016, 13:59:27 UTC
Oh chuck! *hug* I'm sorry but at least you know before anything dreadful happened. Now they know she is safe and can be treated. So thank heavens for that.

All my best wishes, thoughts and feelings are being thrown across the pond, smack bang into your faces right now. *hurls...* ...................... SPLAT! gotcha!!" :)

Keep my in the loop if that's okay and poss *hug*

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