Comments | swisss_misss: Lupus Rash PHOTOS!

swisss_misss

Lupus Rash PHOTOS!

Jul 13, 2007 14:51

So I finally got around to taking a photo of my hardcore rash, caused by FLUORESCENT lights ( Read more... )

Comments 21

Nooooooooooooooooo fibro_witch July 14 2007, 03:50:38 UTC

I hate lupus, I hate lupus, I hate lupus.

Please please please do not get systemic lupus.

please?

I think I posted a picture of what SLE does to my body once, the bruises, the cysts. Stupid lupus.

Re: Nooooooooooooooooo swisss_misss July 14 2007, 03:55:56 UTC

yeah, it rules. i actually do already have SLE.. i've started developing cysts on my lips, and my legs are just awful with bruises.. my back and chest as well. yech!!!

Re: Nooooooooooooooooo fibro_witch July 15 2010, 12:55:35 UTC

Hello, Are you saying you get rashes and bruises where the skin is covered?? I just had my first rash on my covered back, from the bra line to the pant line. Large and the next day it was encircled with a bruise. The new Rheumy said: "you must have fallen and not remember it". WTH. Who would not remember such an event. I had been out in the sun..
After 18 yrs with lupus, this was my first sun rash event. Strange. And bummed with having to find a new Rheumy... I even took a picture to him of the rash..

anonymous July 26 2007, 10:22:37 UTC

I wish there was a third picture where you looked like you used to. You'd be beautiful in all three, but I could see you completely healthy and free from any worry about your health.

swisss_misss July 29 2007, 06:03:04 UTC

How do you know what I used to look like? Hmm.. Secrets! Thank you for the compliment.

I have no photos of myself as an adult without being sick - that's never really happened.

sannylarson May 16 2008, 12:20:25 UTC

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ixi_moron January 14 2009, 11:37:07 UTC

it feels so good looking at your picture...odd thing to say i know,but it was some sort of twisted-relief to find you while searching for info ( ... )

swisss_misss January 15 2009, 08:11:23 UTC

Thank you for the encouragement - something we all need. I'm sorry to hear about your health problems, maybe my new blog can help you better: http://xoswiss.blogspot/com

Best of luck. :)

swisss_misss January 15 2009, 08:12:16 UTC

Oops

http://xoswiss.blogspot.com

your diagnosis anonymous January 17 2009, 11:06:16 UTC

my name is Jenny and I suffered from all of your ailments also with rashes but I was severely bed ridden for almost 12 years of my life last year 12/08
I stopped all meds and today I suffer from not one thing at all <3

but I do have scars on my legs and arms also this was caused by meds fibromyalia is an emotional syndrome ``broken heart `` syndrome not a disease I would like you to contact me if youd like <3

I had every test imaginable leading to all of my diagnoses
I was told it was in my heart and my brain but what actually was in my brain were the thoughts of others not qualified in what stress chemicals and maybe sometimes sadness leads us to <3

Re: your diagnosis anonymous April 21 2009, 04:57:25 UTC

FIBRO IS MORE THAN A EMOTIONAL SYNDROME. YOU HAVEN'T
DISCOVERED THE RIGHT DOCTOR YET! ALL OF THOSE IDIOT
DOCOTORS WHO USED TO SAY IT WAS IN OUR HEADS ARE NOW
FINDING OUT OTHERWISE. I HAVE HAD 2 DOCOTRS CALL AND
APOLOGIZE TO ME FOR TREATING ME THE WAY THEY DID.

Re: your diagnosis anonymous June 6 2009, 18:44:42 UTC

it's a very sad thing to say but many dr's including the Mayo Clinic. will diagnose women that they don't know what to do w/ as fibro! leading to the bad rep as an emotional or fictional problem!! it's soo sad i know people who actually have fibro and people who've been misdiagnosed just because their dr didn't know what to do w/ them!! a complete disservice to both types of patient!! i was one fo the people that they tryed to push the false diag. on!! thank god i had great drs who said yes some of ur symptoms r similar but it's not fibro. i have over the last few years started developing the lupus rashes still going threw the whole diagnos process, lupus, RA, 2 older sisters that have been given diagnoses, of lupus and nonsyrum RA. interestingly enough i was ignored by drs because my chiro was the one that put the symptoms together and told me to get to dr immediatly!! u would think the fact that a chiro was saying get to the dr and go threw treatments we really don't approve of should have made tham more concerned!!