Comments | thesammichfox: LJ Idol Week One: I struggle but I am alive and that is pretty great

thesammichfox

LJ Idol Week One: I struggle but I am alive and that is pretty great

Nov 22, 2016 21:03

There are many things I could talk about with this topic, but the loudest, biggest, in my face struggle of my life is dealing with a genetic chronic illness that each year becomes more and more debilitating.( Read more... )

Comments 5

LJ Idol signups still open! / LJI fav reads list, week 1: I need the struggle to feel alive livejournal November 23 2016, 07:50:16 UTC

User belenen referenced to your post from LJ Idol signups still open! / LJI fav reads list, week 1: I need the struggle to feel alive saying: [...] * http://thesammichfox.livejournal.com/387516.html [...]

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thesammichfox November 23 2016, 13:23:14 UTC

Yeah I'm waiting on a cardiologist to do a tilt table test. Which the hospital I see all my specialists at only lets the cardiologist play with the tilt table. (My Neurologist was like everyone else but me gets to play with the fun toys) Right now it's just a dysautonomia diagnosis and because I didn't want to go through my whole diagnosis history in a short entry I also was diagnosed with gastroparesis and mast cell prior to getting an EDS diagnosis because those were the only two people (GI doctor and allergist)on my team that I liked other than my pcp. And when I finally saw the doctor who diagnosed me he was very matter of fact about it and was like yup EDS.

rayaso November 25 2016, 16:15:59 UTC

I am so, so sorry to hear about your and your child's medical problems. I am glad you both finally have a diagnosis, and that you can receive whatever medical or other help is available.

baxaphobia November 29 2016, 16:30:39 UTC

I'm sorry you're going through this but glad you have doctors that are listening to you. Sometimes accepting the limitations is half the battle. It's so energy sapping to fight when there are easier ways. Good luck!

my_name_is_jenn November 29 2016, 22:53:58 UTC

I have a chronic, progressive genetic condition, too. I'm not sure if mine is more common or if my symptoms are just so specific to the disorder I have, but I was diagnosed when I was a toddler. But there's nothing they can do other than treat the symptoms. The condition will get worse, so we'll treat whatever new symptoms I have when they hit me.