spoons

[trillium_flower]

I found this story today and thought about my situation and alicia_stardust and dragon_mintz. None of us has lupus but we all have syndromes that are largely invisible to people who don't know us. You can substitute any one of a number of "symptoms" of our syndroms for fever, or bruises and the analogy still works. The only thing I'd add is that the only way to get more

Comments

[alicia_stardust]

How...coincidental. I ran across that story just a couple of days ago. Thanks for posting it. Invisible illnesses suck. And I agree with you: knowing it could be worse doesn't necessarily make things easier to live with.

[5minutelimit]

From what I've seen of the three of you, you really don't even get to count your spoons. You often suddenly realize you only have one left.

As I've gotten older, whenever I've been slapped with something (migraines, an injury, aches and pains) my biggest fear is that it will become chronic--that this will be the rest of my life, that I will be permanently limited by pain, and no one will understand. I don't want to live like that, but I don't want to die.
And I think about y'all. You're so young. I couldn't conceive of this at your age. I'm such a weenie in comparison!
I have a friend with Post Polio Syndrome. She has to take narcotics everyday and has been doing so for ten years, just to maintain. She got married last month! The photos are full of joy. Hope.

[aprilstarchild]

I saw that posted to an adults ADD comm once as well--mentally we have spoons, if not physically.