(It's a bit on the long side)
For the first time in a long time I actually managed to buy a couple things for the house, most notably a coffee grinder. I know it sounds frivolous but, it's a cheap one for now and I literally have a freezer filled with whole coffee beans that will probably last at least six months. The other was a new French press because I severely cracked the old one. While I do have a very nice electric coffee pot one of you gifted me on your last move I am hesitant to use it. It's really nice and well, my kitchen manages to burn out the heater element on coffee pots, besides a French press means not having to purchase coffee filters. So for $20 bucks I don't have to buy coffee or filters until August at the earliest.
I've also begun minor repairs. I have finally fixed the flapper on the toilet, did a fairly thorough unclogging of the kitchen sink (and bought a drain catch that can actually stop the finer grounds from the French press from clogging the drain), nicely secured the inner entry door with a new latch and temporarily fixed the handle on the door (after working on it I figured out it should really just be replaced). I have another latch for the outer French door but I haven't had the time to install it yet. I also found these neat little led clip lights to put above the kitchen sink so I can once again do dishes after dark (the light above the sink needs rewiring).
However, it's not enough. I have a bunch of work to do around here. Mostly getting rid of things, piles of paperwork from jobs and things like FEMA, clothes that don't fit, things I was given as people moved in and out of the city that I don't use or need, things people asked me to hold on to and never came back for. There are also those things that I planned on fixing or using "someday". Time and energy gets away from me, but this is a start given I haven't had the energy or the cash to do anything in awhile. I don't think anyone understands just how physically exhausted I have been the last four to five months. If I worked five days I would sleep on and off for the entire sixth day and getting one or two loads of laundry down the block to be done on the seventh day was a monumental task. Now it's a monumental task because the nearest laundry mat is six blocks away, since the one on the corner closed in January.
Health? Ahhh, where to begin….The head/chest cold is finally gone. Still some residual coughing thanks to my smoking habit, still some funky ear popping and tinnitus but eventually that too shall pass.
The last round of test results are in and while there were a few surprises they were good surprises. There was some bad news but, that news was better than some of the other possibilities that were under consideration. More specific tests are being done (and I'm pretty sure those results are in but since I haven't gotten a get your ass in here NOW call I'm going to assume nothing is dangerously out of hand) because knowing what is wrong is not the same as understanding it or how to go about treating/maintaining it. No doubt there will be a few more tests after this as a matter of fact I do know I have to undergo a procedure/test regarding another health issue that may or may not be related to the matter and some "preventative maintenance" like a mammogram. Now that we are 99% sure of what the situation is I could just blurt it all out, but it requires some explanation and that requires a bit more time that I have. Also, the last two plus years of dealing with this have left my mind a bit of a mess as well and I'm still wrapping my head around what is going on. Also I still have to deal with some personal and family issues etc.. that surrounds the whole matter. While I've begun that process I am once again not exactly where I should be. It will probably be another 2-4 weeks before I can discuss it all in detail. That might not be such a bad thing because we will have even a better idea of specifics and treatment by then.
The good news is that with those last tests behind me I am back on a medicine for a chronic condition and while it takes a bit for a body to adjust to it and kick in I'm already feeling sooooooooooooooooo much better. While I'm still far from a hundred percent the difference is like night and day. Honestly so much better.
Right now, my focus has to be making the COBRA payments on time. Unless something abjectly horrid happens I know I'll have the first one in on time. That second one concerns me a bit as I look at my income and savings right now. You have 45 days to come up with that first monthly payment but, that second month (or more depending on how long from eligibility to declaration as passed) comes right after that. In my case it's just a little less than two weeks and then it's about another two weeks before the regular payment date kicks in. In other words I have to pay out a little over $1,100.00 in less than 6 weeks and once again I'm not quite that close. Add to that I would feel better if I could toss in the close $200 I owe on back insurance from the foot injury because I keep having this feeling that could somehow screw things up. Anyway for now I am postponing further tests and visits until the cash is in and the paperwork is finished just to avoid any problems. The docs are good with it for now because it's all just around the corner anyway, besides I don't think any of them are beyond jumping all over my ass if I don't take care of myself at this point.
So if you call could just be a bit more patient and quit speculating on things I would really appreciate it. Also, be forewarned now that I am feeling better I really am not beyond yanking the hair out of the next person who asks me if I am "undergoing chemo". First, I'm not. Second, there are a lot of types of "chemo" and most don't make your hair fall out--that would be radiation therapy which is different. Third, no I am undergoing radiation therapy either. Fourth, yes I am aware that I have lost some hair; I watched it come out sometimes in clumps in my hair brush over the last few months. If it makes you feel better it actually upset me. It has finally stopped after three weeks back on my medicine. Why did it happen? Well there are theories. However, if we had all the answers it wouldn't of taken two plus years to figure a bunch of stuff out. In short, it's all quite complicated.
Finally, quit telling me to smile more. It won't make me smile, except if you ask the chemo question as well and I have a psychotic break of some sort and attack you and your hair. No doubt, I will be smiling then and laughing manically as well. I reserve the smiling for work because I believe I get paid to do that sort of thing. Up until very recently there hasn't been much to smile about, there have been several occasions to roll up in a fetal ball and say things such as, "my that fucking hurts", "can't the fucking drunks outside be quite it's motherfucking 5:00 am", "why?why?why?", "must sleep", "but I don't want to move my body, moving bad", "must scratch itch, don't care if legs bleed", "chewing food requires energy I don't have right now" and my personal favorite, "can't someone just pay everything so I don't have to sit up today".
Paying my health insurance would make me smile, feeling even better will make me smile, hearing that one of the cell counts is somewhere around 1,000 will not just make me smile it will make me burst out in laughter, if for no other reason the expression Dr. L will have on his face when he looks at me.
Money it's an issue. It's not the be all and end all of everything but right now it's damn important. Its tool that fixes a whole lot of things right now including my body, yes, close to 4 bills a month is a lot for insurance. It is however my ONLY option for insurance, I can't get private insurance. Sure I have my little certificate saying I've been insured, does that mean preexisting conditions are allowable, maybe yes, maybe no. In any case they will raise the premium to close to the COBRA rate or find a way of dropping me all together. As for the State "high risk pool insurance" Ha ha ha it's more expensive than what I have now. As for going without insurance? The medical bills are high now; they would be insane without it. Also I've already met one deductible and am close on another one so it would be stupid to let it drop and If I don't get that $1,100 + in I will owe about the same amount in labs alone.
Add to the insurance the remaining medical bills (insurance only pays a percentage until you reach deductibles, and only percentage of something all together) I think it's somewhere around another $500 (I'm still trying to figure out the bills from Tulane regarding my foot), the new glasses $300 more to go there, life insurance (still no idea what that will be) and that adds up to close to another grand with more to come. Add in back rent from when I injured my foot, a couple of other smaller back bills, there's another grand.
Now add in monthly expenses and well money really does make my world go around. There is no progress without it.
Mind you things are a hell of a lot better. I've been able to pay (and on time) the monthly bills and the rent. I've paid off quite a bit in just a few months even knocked some stuff like the radiologist right off the list but, once again it's not quite enough. Pardon, my seeming obsession with making cash but, it's me without a net. There's no parental unit to cover my ass, no life partner to pitch in, no family in any position to help out, it's all on me all the time. While Mardi Gras made a nice dent it fell short of expectations in part because I got so sick so I didn't perform as well, actually couldn't even work Mardi Gras Day itself, and I wasn't able to do much of anything else to bring in extra cash. Add to that the cost of a Z pack (which the insurance will reimburse once I pay them the premium), cold medicine, etc and well I was short about 5 bills from what I really needed to make and spent probably a bit over a bill than I expected. I need to make that up or as much of it as possible over the next couple of weeks. The sooner I knock out some off this debt, the sooner I get can get the medical/health issues under control and the sooner I can move forward with other things, Not to mention less stress and more time and energy doing things I enjoy.
Now my question is how to come up with an extra 200-300 over the space of two weeks? Well this week is St. Pat's so that is helpful. The weather is better and if it would just quit raining on my days off that would be helpful as well.
I guess I could start hunting for another job, but that is more a long term solution. For now, I'm just going to try to combine readings, bidding on freelance work and maybe picking up an extra shift or two at work.
Right now I put in about 40 hours a week at the restaurant between Friday and Monday, some weeks it's a little less, some weeks it’s a bit more. I know that sounds like I have three days off but, I don't. I also put in a couple of extra hours on Thursdays and I try to do either freelance work or readings on at least one other day if I'm not at a doctor's office. Also since those weekend shifts get pretty long there is little time to get anything else done so everything like laundry, shopping, errands all falls on those other days. For instance right now I have to stop everything change and run off to work. When will I get back to writing this? Sometime tomorrow for maybe 15 minutes.
Well as I said, now that we are sure what is going on (there is a small, very, very small chance that the docs are wrong) I have a better idea of what I can and can't do, when certain things will be done, and when I can start to do certain things. None of it's precise or etched in stone but, it's more than I've had for awhile. By the end of March I will at the very least have the COBRA payments taken care of, I should also be physically better with my body fairly adjusted to the medicine, the procedure/test should be scheduled with one of the doctors, and I should have had the meeting with the other doctor about the last test results. Also, around that time there will be some schedule changes with work and hopefully with all of that things should start falling into place at least that is what I hope. I have plans and it would be nice to actually have them materialize. Until then the schedule and physical demands will be a bit hellish. I say a bit because it won't be as hellish as Carnival was.
Between now and the end of the month I will be in full work mode, especially since I am regaining the energy to do so. My schedule won't leave much time for anything else. Any free time will unfortunately have to be devoted to things such as the pile of Buxs benefit paperwork that I need to complete, taxes, etc. In short, much will not be changing. Doctors appointments will be replaced with bureaucratic paperwork, the time that was spent sleeping will be replaced by more work. However, it's not lasting forever; it's just a few more weeks. Finding time and having the energy to do things has been difficult and at least now am regaining the energy. Time remains difficult and it can be complicated by circumstances I have little control over, eg. The corner laundry mat is closed, so now it's a six block ordeal, the hardware store down the block is closed and the closest one is an entire neighborhood away, it's pretty much impossible for anyone to get a cell phone signal where I work.
Given the circumstances I have to prioritize what gets done when and very often that means some stuff just doesn't get done. Given the nature of my job even if the signal there was fantastic I wouldn't be able to just take or return a call whenever I felt like it so phone calls need to wait. The same for text messages (and the signal in the building is so bad I often can't get those unless I walk outside). The shifts are often long and they are primarily on the weekend when most of you are free. By the time I get off of work it's too late to return a call and before work is a difficult time for me to make calls as the first few hours after I wake up is still a difficult time for me physically. Given that it may be a few days before I return a call and it may be a couple of weeks before I actually have the time to make a call and say hi. Emails are even more difficult because there are even more of them. I have multiple accounts, the spam on some is insane even with filtering, emails related to freelance work or readings are responded to first and quite frankly if you are prone to sending jokes, amusing photos or newsletters is it is likely I will pass over what you send me because, I really don't have the time for it. It sounds like an easy enough thing to open and read but, it's not just one person it's twenty people or so who do that, and you can't always tell what the content of the email is by the header and I just don't have a half hour to look at pictures that people find online so I may miss some of your "real emails" trying to avoid those. I know that it leaves an impression that I am selfish or that I don't care. I also realize that there are a few people who are attempting to be helpful, if not going out of there way to assist in a few matters and I'm not begrudging that at all. For instance there is one person who is trying to help me out when it comes to some personal (primarily family) matters. They have been waiting for me to send them information and I honestly haven't had the time to get them the information. I started searching for the photos on my computer and couldn't find them there (well not the clear ones), I have them, I know I have copies in the cloud somewhere, I know there is an email with attachments with some of the photos, I also know exactly what file on my laptop they are located in, but I can't turn on the laptop and haven't had time to transfer those files from the HD to the desktop. While that matter is important to me, it hasn't been as important as keeping my job, dealing with health issues, being able to lock my front door or flush my toilet. Yes, those have been my choices and it simply has had to wait. I also realize that they may very well decide they don't want to help me or that they won't have the time to assist to me by the time I am able to get the information to them. It's just the way it is. Over the last few months I have come to the conclusion that if something can't get done it just can't get done.
Needless to say blogging takes a bit of time. With the exception of blogs about the medical situation, a carnival stream of thought thing, and a few random pieces that were written over the last couple of weeks pretty much everything has been put up. I'm still working on degrees of openness regarding some work related items. I'm sure I will be writing a bit here and there over the next few weeks as it helps keep me sane, but actually getting it up is another story. Given that I began writing this on March 4th should say something. Just be a bit more patient. I have every intention of writing and publishing with more regularity (and no they won't all be about work or other bs going on in my life there will be other things). As far as the health related items, I just need a little more time to negotiate the personal ends there before I go throwing that up on the net.
Patience is a virtue so I have been told.
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I would hardly call myself a virtuous woman