(no subject)
Well! Holy crapstick it’s Thursday, I’ve got a crap ton to do, and I want to fit crap into this sentence one more time. Achieved!
I gave the ferrets to the foster folk on Tuesday and the house is super quiet now. It’s very strange and I don’t know how I feel about it. Well... I know I feel good in that they’re with great people who are already getting them to the vet to get their stuff taken care of and what not, and they’re with other critters having fun, and they’re generally getting loved in major wonderful ways... but they were my friends, and little creatures like them have been in my life as my friends for nearly ten years. There’s a hole in my life where they were and no amount of knowing that it was the right thing to do will quite make that go away. Good, but sad, but good.
Saw the doctor again on Wednesday to finish up our first appointment, after I read the brain book. We have a plan to start treatment and generally steer the boat of figuring WTF is going on down the right er... path? What would you say with a boat metaphor? Waters?
Anyway... I’m back on the topiramate (have been since I saw him last week), and I’m going to step up the dose every week to 200mg but only at night... that should help reduce symptoms while still getting benefit of the drug itself. We’re holding off adding in new drugs until we know what happens with the topiramate, which treats neuropathy (amongst other things). I’m going to book appointments with psych doctors who do stuff with bio feedback and neural plasticity and stuff like that to see about retraining my brain to deal with pain in new and hopefully better ways. And finally, I’m going to see a doctor who specializes in Ehlers-Danlos syndrome, physiotherapy, and neural plasticity to see if I have it, for one, and for two, to treat my general hyper-mobility whether I have that particular syndrome or not. My current running diagnosis is: chronic neuropathy, with symptomatic signs of inflammation and hypermobility, and for insurance purposes, fibromyalgia. Not a real diagnosis to stick to me, but weird to hear associated with my name none the less.
And the move! Oh my goodness the move... I get the keys around the 10th, and officially move in on the 15th. I don’t remember if I mentioned that I got the place I wanted... well I got it! Yay! Now I just have to pack my whole life up and, uh... move. Holy crap. In fact, as soon as I stop writing this update, I’m going to pour a glass of wine and start going through my closet to see what I can get rid of... my mission this move is to get rid of all sorts of shit. I’m keeping art and music stuff, but ditching a bunch of old silly nonsense I’ve kept for some reason, clothes, and I think some of the furniture too. A snake shedding its skin, to reveal beautiful iridescent loveliness underneath.
So here I go world, look at me! Ready to take a nap and maybe do some drooling and gazing into my bellybutton any time now... er, I mean, leap into action and get shit done! That’s right, a packing machine!
I gave the ferrets to the foster folk on Tuesday and the house is super quiet now. It’s very strange and I don’t know how I feel about it. Well... I know I feel good in that they’re with great people who are already getting them to the vet to get their stuff taken care of and what not, and they’re with other critters having fun, and they’re generally getting loved in major wonderful ways... but they were my friends, and little creatures like them have been in my life as my friends for nearly ten years. There’s a hole in my life where they were and no amount of knowing that it was the right thing to do will quite make that go away. Good, but sad, but good.
Saw the doctor again on Wednesday to finish up our first appointment, after I read the brain book. We have a plan to start treatment and generally steer the boat of figuring WTF is going on down the right er... path? What would you say with a boat metaphor? Waters?
Anyway... I’m back on the topiramate (have been since I saw him last week), and I’m going to step up the dose every week to 200mg but only at night... that should help reduce symptoms while still getting benefit of the drug itself. We’re holding off adding in new drugs until we know what happens with the topiramate, which treats neuropathy (amongst other things). I’m going to book appointments with psych doctors who do stuff with bio feedback and neural plasticity and stuff like that to see about retraining my brain to deal with pain in new and hopefully better ways. And finally, I’m going to see a doctor who specializes in Ehlers-Danlos syndrome, physiotherapy, and neural plasticity to see if I have it, for one, and for two, to treat my general hyper-mobility whether I have that particular syndrome or not. My current running diagnosis is: chronic neuropathy, with symptomatic signs of inflammation and hypermobility, and for insurance purposes, fibromyalgia. Not a real diagnosis to stick to me, but weird to hear associated with my name none the less.
And the move! Oh my goodness the move... I get the keys around the 10th, and officially move in on the 15th. I don’t remember if I mentioned that I got the place I wanted... well I got it! Yay! Now I just have to pack my whole life up and, uh... move. Holy crap. In fact, as soon as I stop writing this update, I’m going to pour a glass of wine and start going through my closet to see what I can get rid of... my mission this move is to get rid of all sorts of shit. I’m keeping art and music stuff, but ditching a bunch of old silly nonsense I’ve kept for some reason, clothes, and I think some of the furniture too. A snake shedding its skin, to reveal beautiful iridescent loveliness underneath.
So here I go world, look at me! Ready to take a nap and maybe do some drooling and gazing into my bellybutton any time now... er, I mean, leap into action and get shit done! That’s right, a packing machine!