too much information!!!

[addyit]

i wonder how many of CFers take matters into their own hands when it comes to their meds.
say, when you're sick, clinics dither and comci com ca, and you don't want to take the extra step of having to go in the hole?

i did, and i hope it's going to work for me. i AM telling them what i'm doing, i just hope it's the right thing.

it's so frustrating to

Comments

[missdiane]

It kind of makes me wish that some of these rat bastard dither-ers would experience what you experience for even one hour as karma punishment. Betcha they'd get back to you much quicker

*rufflyhugs*

[addyit]

oh, i don't.
i'd never wish this on anyone. you might get your wish, and regret it for the rest of your life.

it's why educating those who treat you is VERY important. it's why when i'm in the hole, i end up talking to the doctors, residents, nurses, everyone who will listen. they need to be reminded it's a person they're treating with a disease, not just a disease.

CF doctors seem to have VERY high expectations of their patients. and boy, do they follow through. there are so many more patients who experience so much more than me. it's why reminding people what chronic pain is, is VERY important. the list of things to educate, in the SMALL hope it might help them treat someone, it just goes on and on.