My new journal...a little more private than this but here it is.... www.xanga.com/blubtrfly88

Well I finally had my Tilt Table Test done at St. Vincent's...I guess I'm a little worse off than I thought. I have been diagnosed with POTS aka Pot Syndrome aka Postural Orthostatic Tachycardia Syndrome. It is a non-curable heart disease that is also correlated with Chronic Fatigue Syndrome. What happens with POTS is that I have tachycardia ( ( Read more... )

Today was pretty rough....on top of being sick and worried about the future and my health, i blew up at my sister and I was COMPLETELY wrong to do it!! I feel like a horrible person, I don't know what's the matter with me. Somebody needs to come over here and bitch slap me pronto....free beer for whoever does it first!

Why can't I be strong? I'm sick of being sick and I can't take it anymore. I cried all day. I hate being scared and I wish I were stronger emotionally. I wanted to go back to work so bad today. I hate not feeling like myself. I haven't been myself since I got sick. What the hell is wrong with me???

I'm on the road to recovery. It's about damn time!!! I'll have to take pills for the rest of my life but that's ok as long as my heart goes back to normal...since I took my first pill about 2 hours ago, I've noticed that my heart has pretty much stayed in the normal range, between 60-70 bpm. Yay!! I'll be tired for awhile and it'll take some ( Read more... )

I don't really have a hell of a lot to say as far as my health right now...just that I haven't improved and that I am now wearing what's called a "King of Hearts" monitor or a holter monitor to keep track of my heartbeats. I'm noticing that unless I've been laying down watching TV for an hour, my heartrate is usually around 110-120 bpm. Even just ( Read more... )

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Ok I'm back, I had to run to the gas station. Anyway, so I'm laying there in the bed and they had to take blood from me three different times all in the same arm and it was starting to hurt! Motherfuckers. Sorry, I get crabby. So after the doc looked me over and tested me a gazillion times, he comes up with the idea that I may have an adrenal ( Read more... )

Well, I ended up going back to the hospital a 2nd time in 24 hours. These attacks are pretty damn scary!! I knew I was going to have another one and I tried to ride it out at home by distracting myself and taking a cold shower but it didn't work. I got Brian to drive me in to AMC and I almost collapsed at the front desk, which was extremely ( Read more... )

I'm just trying to stay alive. I don't know what's wrong with me, but I had another heart episode last night. I told Laura, a friend of mine at work that I wasn't really feeling up to par and my pulse was acting retarded again and got her to take me in to St. Mary's. So, I'm just sitting in the triage office with Laura, talking to the nurse when ( Read more... )